Patient Family Resources
Links and Resources
The following page offer additional information to help you understand kidney disease and dialysis, transplantation, dialysis industry news and other opportunities available for dialysis patients. If you are looking for state specific resources, please visit our State-by-State Resource Page.
General Pre-Dialysis and Dialysis Education
- http://www.lifeoptions.org/ (pre-dialysis and dialysis education)
- http://www.kidneyschool.org/ (pre-dialysis and dialysis education)
- http://www.davita.com/ (pre-dialysis and dialysis info)
- http://www.kidney.org/ National Kidney Foundation; kidney disease, research
Dialysis Treatment Options
- http://www.homedialysis.org/ Home Dialysis Central offers resources and support for patients interested in peritoneal dialysis and home hemodialysis. Talk to other patients, read stories, find a home clinic, and more.
- CMS Dialysis Facility Compare
Transplantation
- http://www.unos.org/ (transplantation)
- http://www.transplantliving.org/
Paying for Dialysis
- http://www.medicare.gov/, then enter search term “dialysis” (Medicare benefits for dialysis patients)
- http://www.kidneyfund.org/ American Kidney Fund
Dialysis Industry News and Medical Breakthroughs
- https://www.healio.com/nephrology (dialysis industry news)
- http://www.usrds.org/ (dialysis statistics, data)
Other Kidney Organizations
- http://www.esrdnetworks.org/ (resource for patient grievances)
- https://www.rsnhope.org/ (Renal Support Network)
- http://www.pkdcure.org/
Pain Management
- Understanding and managing chronic pain webinar
- Chronic Pain: https://www.asahq.org/whensecondscount/pain-management/types-of-pain/chronic/
- Opioid Treatment: https://www.asahq.org/whensecondscount/pain-management/opioid-treatment/
- Non-Opioid Treatment: https://www.asahq.org/whensecondscount/pain-management/non-opioid-treatment/
Emergency Preparedness
- Emergency Preparedness for ESRD Patients webinar: https://youtu.be/OJIVcVvmmBE
- https://www.ready.gov/plan Create your own emergency plan for your family. You can create a customized plan to account for your needs as a CKD patient.
- http://www.kcercoalition.com/ Kidney Community Emergency Response Coalition
Dialysis Patient Travel
- 1-866-4DIALYSIS (1-866-434-2597, Option 2) – provides free assistance in locating and scheduling dialysis treatment for all patients traveling in the United States and abroad.
- www.dialysisfinder.com helps you locate dialysis centers around the country.
Facebook and Twitter
Kidney Blogs and Other Website Resources
- The DPC Education Center makes no claims, promises or guarantees about the accuracy, completeness, or adequacy of the contents of external web sites and programs. In addition, the Center does not endorse the content or information contained in external website links, nor does the content necessarily reflect the views of the Center.
Additional Resources at Dialysis Patient Citizens Education Center
Related Information
Support Groups
Coping with a chronic disease is not an easy task! The journey is challenging, tiring, frustrating--often depressing, and lonely. One can feel that no one is experiencing or understanding their respective circumstances. A support group [...]
Merida Bourjolly: Taking Control of Her Care and Finding Meaning Through Advocacy
Merida Bourjolly, President of DPC Education Center Board of Directors Merida Bourjolly had a kidney removed when she was just three weeks old, though it wouldn’t be until much later that her [...]
For Gene Blankenship, Family is Everything
Eugene Blankenship, DPC Board of Directors Gene has had a front row seat to life with kidney disease for as long as he can remember. His entire family has been affected by [...]
Knowledge to Empowerment
Nancy L. Scott, DPC Education Center Project Manager As I sat on the side of my hospital bed on a cold night in March of 2004, my heart was broken and it [...]
NephU Provides Resources for Dialysis Patients
Learn more about the Education Center's collaboration with NephU, a community of health care professionals and advocates collaborating to improve kidney health.
DPC Education Center 2023 Review and 2024 Preview
GREETINGS! This past year was an exciting one for the Education Center. We ramped up our social media platforms, allowing more direct exposure and interaction with our audience, including monthly LIVEs on Instagram and Facebook. [...]
