News & Events
Discover new information and educational offerings that we provide. Explore our newsletters, blogs and upcoming webinars/conference calls.
Contents:
For Dialysis Patients: Update on COVID-19, Delta Variant and Vaccination
Written by: Alan S. Kliger, M.D., Clinical Professor of Medicine, Yale School of Medicine, and Co-Chair, American Society of Nephrology (ASN) COVID-19 Response Team. COVID-19 continues to be a dangerous infection for dialysis patients. Here are some facts every patient should know: Why should I get vaccinated now if I’ve been waiting so far? The vaccines clearly protect dialysis patients, particularly by greatly reducing hospitalizations, complications and death from COVID-19 infection. If you’ve been waiting to see if the vaccine is safe, there have now been hundreds of millions of people vaccinated, with almost no severe complications from the vaccine. Did you get vaccinated for measles? Mumps? DPT? The COVID vaccines may be the safest [...]
Anxiety and Kidney Disease
By Kathy Aebel-Groesch, MSW, LCSW It will come as no surprise that anxiety has increased during the COVID-19 pandemic (not to mention the political and social climate). Even those of us who have never experienced anxiety may be finding ourselves affected. Anxiety can affect how we function in daily life--imagine yourself in a situation where you have felt extremely anxious… How did you feel physically? How clearly could you think or concentrate? How thoroughly could you have learned important information or skills? The interdisciplinary care team at the dialysis clinic is there to support you if anxiety could be affecting your ability to manage your dialysis treatment plan. How common is anxiety? 31% of adults [...]
FDA Authorizes Third Dose “Booster Shots” of Pfizer and Moderna Vaccines for Immunocompromised Individuals
On Thursday, August 12, 2021, the FDA updated the emergency-use authorization (EUA) for the Pfizer-BioNTech and Moderna Covid-19 vaccines. Americans with compromised immune systems are now eligible for a third dose, or booster shot, of these vaccines. This broadened EUA includes individuals who are kidney transplant recipients or have other diagnosed conditions that are considered to be of “equivalent level of immunocompromise.” This decision was made after a thorough review of the available data, in order to allow doctors to boost the immunity of some of their most vulnerable patients who need extra protection from COVID-19. Many transplant patients have been unable to generate antibodies after the first two doses of either vaccine, but recent [...]
One Step Closer to a Wearable Artificial Kidney
For the past 20 years, Victor Gura, MD, FASN, an associate clinical professor of medicine at the Geffen School of Medicine at UCLA, has been working on a wearable artificial kidney, or WAK. Gura has been through multiple iterations - from prototype 1.0, which weighed over 200 pounds, to prototype 2.0, which weighed 11 pounds and was tested in clinical trials in Italy, London, and Seattle, to the latest version, WAK 3.0. Weighing in at just 2 pounds and powered by a rechargeable battery, WAK 3.0 was issued patent number 10,993,183 for a combination wearable and stationary dialysis system. The description of the device given for the patent states that WAK 3.0 a hemodialysis system [...]
Here’s why the CDC recommends wearing masks indoors even if you’ve been fully vaccinated against COVID-19
By Peter Chin-Hong, University of California, San Francisco. What science supports masking after vaccination? Masks help stop the spread of the coronavirus. They’re a literal layer between you and any virus in the air and can help prevent infection. The reason public health officials are calling for more mask-wearing is that there is clear and mounting evidence that – though rare – breakthrough COVID-19 infections can occur in people who are fully vaccinated. This is particularly true with emerging variants of concern. The good news is that COVID-19 infection, if it does happen, is much less likely to lead to serious illness or death in vaccinated people. Some conditions make a breakthrough infection more likely in a vaccinated person: more virus circulating [...]
Artificial Intelligence and Kidney Health
Nephrologists know that treating their patients means addressing not only kidney health, but also including comorbidity issues such as vascular access issues, phosphorous levels, and fluid levels. Now, new artificial intelligence (AI) technologies can actually help health care providers not only manage these issues, but also help reduce the risk of recurrence. AI can assist in the analyzation and interpretation of studies and data collected on a patient in order to look at the body in a more collective way. All of this data is used to create what is called a “mathematical twin” of the patient, which allows health care providers to look at the physiological make up of their patient and run simulations [...]
Mind Over Matter – How Mindfulness Can Help Improve Both Mental and Physical Health
With a million things all going on at once in our lives – work, family, friends, school, health, news, etc., it’s hard to think about focusing on just a few things at a time, let alone just one. However, it is possible to train yourself to focus in just on what you are thinking or how you are feeling in the present moment (without judgement); this is mindfulness. While not a new concept, mindfulness has been gaining more attention in today’s society as a way to increase awareness between the mind and body and to help improve concentration. Additionally, it also comes with health benefits, such as reduced anxiety and depression, ability to help lower [...]
Dialysis Patient Citizens Statement Commemorating Juneteenth
WASHINGTON, D.C., (June 17, 2021) — Dialysis Patient Citizens (DPC) today released the following statement recognizing Juneteenth and reaffirming its commitment to addressing healthcare disparities among kidney patients nationwide. “Today we commemorate Juneteenth, an important day in history that celebrates the emancipation of enslaved Americans and allows us an opportunity for reflection on both our nation’s history and how much further we have to go,” said DPC Board President Andrew Conkling. “Black Americans continue to face systemic inequalities in our country, including healthcare disparities that disproportionately hurt patients from communities of color. Too many patients with kidney disease experience firsthand unacceptable racial disparities in healthcare and DPC is committed to doing our part to ensure that every patient has [...]
If You’ve Gotten a COVID-19 Vaccine, Don’t Get an Antibody Test
Thanks to the COVID-19 vaccines, life is beginning to look a little more like it did pre-pandemic and people are out and about as many states start opening back up. Some people are uncertain about the effectiveness of the vaccine or its ability to protect against different variants and have considered antibody tests as a way to check the effectiveness of their vaccine. Public health officials are urging fully vaccinated people not to get antibody tests though, as they have limitations. Antibody tests are a great way to understand if someone has been previously infected with coronavirus and didn’t know at the time. If you are fully vaccinated though, antibody tests are not useful in [...]
New Online Course for Parents and Caregivers of Children with Kidney Disease
The DPC Education Center is proud to announce a new free course, in partnership with the American Psychological Association, for parents and caregivers of children living with kidney disease. It explores the changes that happen within families due to a chronic illness and offers tips to help your family cope and thrive. Check out the Course
Staying Safe in Summer Heat
It is finally summertime! After a long winter of being cooped up indoors, it’s great to finally be able to go to the park, the beach, or even just a nice little walk around your neighborhood. As temperatures around the country are rising though, it’s important to be mindful of the risk of heat-related illness, especially if you have kidney disease or another health condition. Hyperthermia is a illness that happens when your body becomes overheated. Mild cases can cause muscle cramps or swelling in the feet, whereas a more serve form, heat exhaustion, means that your body can no longer keep itself cool. This can cause you to become dizzy or nauseous, or even [...]
Ask Your Nephrologist: What is happening to my skin and nails?
Keith A. Bellovich, DO There is a broad range of skin manifestations when having to depend on dialysis. Skin disorders can affect a patient's quality of life and can negatively impact their mental and physical health. Itching (uremic pruritus) is by far the most common complaint that patients suffer. But dry skin (xerosis cutis) and skin discoloration are also common complaints in patient with severe loss of kidney function. Dry skin is caused by reduction in the size of sweat glands and atrophy of sebaceous or oil producing glands. Dry skin increases the susceptibility to infections and this is aggravated by delayed wound healing of the skin. Alterations in the color of your skin, in [...]
CMS Makes it Easier for Consumers to Find Prices on Hospital Services
The Centers for Medicare & Medicaid Services (CMS) issued a new rule on hospital price transparency that went into effect January 1, 2021. Under a section of the Public Health Service Act (PHSA), hospitals are required to publish a list of standard charges each year. Originally, hospitals could fill this requirement just by publishing their chargemaster list (a comprehensive list of all products, procedures, and services provided by a hospital) online; now, however, hospitals are told exactly what they are required to publish, and how to publish it, in order to comply with the PHSA. Hospitals must publish the following five types of charges to a machine-readable file for all “items and services” the hospital [...]
COVID-19 Vaccines for Dialysis and Transplant Patients – What We Know
As more and more people in the United States receive the COVID-19 vaccine, researchers have been able to learn more about efficacy rates in different patient populations. Unfortunately, preliminary research suggests that efficacy rates may be lower in both dialysis and transplant patients. In a small study, published April 6, 2021 on CJASN ePress, researchers found that, although study participants on hemodialysis did develop a substantial antibody response following two doses of the Pfizer-BioNTech mRNA vaccine, it was significantly lower than the response of the control group comprised of participants not on dialysis. It was also found that older patients, regardless of chronic medical conditions, were more likely to develop less of a response. A [...]
How I Cope During the COVID-19 Pandemic
By Nina Kasl, dialysis patient This pandemic has us isolated from things we used to enjoy! We are unable to visit our friends and families. It is not going to go away anytime soon. Just taking walks by myself was not making me good at all. I knew then I needed to do something. That something had to be done. I was tired of the isolation I felt. I needed something that I could do on my own or with the immediate family. I made an idea sheet. It showed me what I can do. I found journaling as a way of expressing myself. You can yell scream, shout, and cry. No one cares. You [...]
There Is No Place Like Home
By Shaminder Gupta, MD, Nephrologist End Stage Renal Disease (ESRD) is a life changing diagnosis and impacts both the patient and the family. While waiting for renal transplantation, renal replacement therapy (RRT) is required to sustain life. RRT, also known as dialysis, can be provided either in-center or at home. Home therapies can either be via peritoneum (PD) or via fistula (HHD). Patients are concerned about their own abilities to provide this life sustaining therapy on their own. This is natural and should be anticipated as a barrier. Most of us, including medical professionals, would also share these apprehensions. Success at home depends on the initial attitude of the patient who is being asked to [...]
What We Learned from Care Partners
By Kathi Niccum, EdD, Education Director The 2020 DPC Member Survey included a section for caregivers/care partners. From the 146 respondents, 84% were women and the average age was 55.6 years. The caregivers did much of the grocery or other shopping, the housework, meal preparation, managing finances and helped with transportation and other outside services. But besides playing a key role in managing the household, they also were involved in nursing tasks, helped monitor the severity of their care recipient’s condition, helped communicate with health care professionals and helped their care recipient advocate for themselves regarding health care providers, community services, and government agencies. Caregiving activities may happen gradually or suddenly. Sixty-four percent (64%) of [...]
Getting Fit After Transplant
By Collette Powers, MA, RDN, LDN, ACSM EP First of all, let us start off by saying a huge congratulations! Whether you are preparing for a transplant or already received a kidney transplant, you have taken a pro-active step in your own healthcare. This is a major accomplishment and one worth much recognition. Kudos to you! As part of the transplant journey, you learn a great deal of information regarding the transplant process. Topics may range between diet management, medication management and organ infection/rejection prevention to name a few, but what about physical activity? Can you exercise after receiving your new kidney? Should you exercise? Is it safe to exercise? These are all great questions [...]
My Experience Working During the COVID-19 Pandemic While Living With A Kidney Transplant
By Merida Bourjolly, DPC Education Center President ANXIETY OF COMING BACK I am sure everyone has felt the impact of the COVID-19 Pandemic. This is the first time I have experienced a complete shut down in my industry due to a virus. Additionally, the lockdown provided an opportunity for a pause and a chance to rethink my priorities and what is meaningful. From a financial perspective, this shut down taught me how to adapt to uncertain economic times. I am really grateful for technology that helped us connect virtually, provided an opportunity to work, and to make it through a stressful time. Sustaining a business without revenue is not the only financial undertaking I faced; [...]
Cystinosis: A Rare and Under-Recognized Cause of Kidney Failure
By Ladan Golestaneh, MD, MS What is Cystinosis? Cystinosis, or Nephropathic Cystinosis, is a rare genetic disease that affects boys and girls equally and causes a defect in the way that lysosomes (small organelles in cells that remove waste products) are able to remove an amino acid (protein subunit) called Cystine.1-4 The name of the defected gene is CTNS which affects “Cystinosin”, the protein that normally takes Cystine out of the lysosome. As a result of this defect, Cystine accumulates in the cells of various organs and tissues of the body and causes extensive damage. The disease is progressive, meaning it gets worse with time.3 Cystinosis is passed down to affected individuals through an autosomal [...]
