News & Events
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Digital Health Records – You can now access them, but not easily
On October 6, 2022, new federal rules took effect that require health care organizations to give patients unrestricted access to their digital health records. These rules that were passed under the 21st Century Cares Act are designed to empower patients by not only giving them the ability to access their own data, but also decide who to share that data with, which was previously not the case. This means that patients can better understand their care, shop for services, and engage in their own research. It also removes roadblocks such as fees and delays that were the norm for patients requesting their medical records before, despite HIPAA requirements providers turn over records when patients ask [...]
Recipe of the Month: Spider Cheeseball
Get a brand new, kidney-friendly recipe* delivered to your inbox each month, courtesy of Jessianna Saville, MS, RDN, CSR, LD, CLT, a member of the Ed Center Advisory Council and Founder & CEO of the Kidney Nutrition Institute. October’s recipe is perfect for a Halloween get together, or just anytime you’re craving some cheese (disguised as a spooky spider or not!): Spider Cheeseball Recipe create by Jessianna Saville, MS, RDN, CSR, LD Ingredients: Makes 16 servings 1 8 oz package, softened cream cheese (Check your packages carefully. Lowfat is not always the lowest in sodium.) 2 oz feta cheese crumbled 2 tablespoons olive oil 2 cloves garlic minced (If you love garlic, we actually did 3 garlic cloves and it tasted fantastic.) 1 teaspoon dried oregano [...]
Organ Transplants Are Up, but the Agency in Charge Is Under Fire
By Blake Farmer, Nashville Public Radio September 7, 2022 For the past decade, Precious McCowan’s life has revolved around organ transplants. She’s a doctoral candidate studying human behavior in Dallas who has survived two kidney transplants. And in the midst of her end-stage renal disease, her 2-year-old son died. She chose to donate his organs in hopes they would save a life. Now her kidney function is failing again, and she’s facing the possibility of needing a third transplant. But the process of finding that lifesaving organ is rife with problems. Roughly 5,000 patients a year are dying on the waitlist — even as perfectly good donated organs end up in the trash. The agency that oversees donations [...]
New Study Shows Age-Related Kidney Function Differs by Gender
A study of 1,837 people aged 50-62, which replicated accurate measurements of kidney function in health women and men over time, may partly explain why more women are diagnosed with early CKD and more men develop severe CKD and kidney failure as they age. The baseline mean glomerular filtration rate (GFR) was 90 ml/min/1.73 m.2 for women and 98 ml/min/1.73m.2 for men (P<0.001). However, additional measurements over 11 years of follow-up showed that men experienced a mean decrease in GFR 25% more than women. The study, published in Journal of the American Society of Nephrology (JSN) showed that the relationship between age and GFR was about linear in women, but curvilinear in men, with [...]
Recipe of the Month: Baked Apples with Crumble Topping
Welcome to our new article series, Recipe of the Month! Get a brand new, kidney-friendly recipe* delivered to your inbox each month, courtesy of Jessianna Saville, MS, RDN, CSR, LD, CLT, a member of the Ed Center Advisory Council and Founder & CEO of the Kidney Nutrition Institute. For September, we have a great recipe to get you in the mood for autumn: Baked Apples with Crumble Topping Recipe created by The KidneyRD Team Ingredients: Makes 4 servings 3 tablespoons coconut oil cold and firm 2 tablespoons all purpose flour 2 tablespoons brown sugar packed ¼ cup rolled oats ¼ cup chopped walnuts ¼ teaspoon ground cinnamon or up to ½ teaspoon for stronger flavor 1 dash of salt 2 apples A splash of lemon juice Optional topping: sweetened whipped coconut [...]
COVID-19 Transmission and Understanding Exposure Risks
The Centers for Disease Control and Prevention (CDC) has created a series of questions around factors that can determine a lower or higher risk of COVID-19 transmission. These questions are designed so you can assess your risk of exposure and possible transmission in various settings, as well as the likelihood that you were infected if you had recently been around a person with COVID-19. If multiple factors indicate you could be in a higher transmission risk scenario, you may consider adding more preventative actions or take steps outlined for what to do if you were exposed. As always, you should consult with your healthcare team to make sure you are taking the recommended precautions [...]
World’s First HIV-Positive to HIV-Positive Heart Transplant Performed
Earlier this spring, a woman in her 60s became the first to receive an HIV-positive to HIV-positive heart transplant. She suffered from advanced heart failure and received the donation, which happened simultaneously with a kidney transplant, during a four-hour surgery at Montefiore Health System in the Bronx. The woman spent five weeks recovering in the hospital and is currently being monitored by transplant physicians at Montefiore. In 2013, the HIV Organ Policy Equality Act enabled people living with HIV to donate their organs to HIV-positive recipients, but this is the first time this opportunity has been able to happen for heart transplantation. Montefiore is one of just 25 centers in the U.S. that is able [...]
Will the COVID-19 Pandemic Ever End?
By Alan S. Kliger, MD, Clinical Professor of Medicine, Yale School of Medicine, and Chair, Excellence in Patient Care Advisory Committee, American Society of Nephrology Updated October 2022 Some recent quotes I’ve heard - - - I’ll bet you have too: “Who can even pay attention when the subject of COVID-19 is raised?” “Enough already – I’m through with it” “What’s the difference? Even with vaccines and boosters, I still got COVID twice!” After nearly three years of this pandemic, COVID-19 infection has gone from a frightening and deadly disease to a major disruptor of our lives, to annoying background noise for most of us. And yet, the emergence of the Omicron [...]
The New 988 Suicide & Crisis Lifeline Has Launched
As of July 16th, people experiencing a mental health crisis (or their family and friends) can call or text 9-8-8 to reach help. The new 988 Suicide & Crisis Lifeline is modeled after 911 in order be easier to remember and provide a quick way for those in crisis to connect to a trained mental health professional, 24/7. The Lifeline is a national network of over 200 local crisis centers, providing free and confidential emotional support, along with connection to local resources, if necessary. When calling into the Lifeline, you will: First hear an automated message – this will outline additional options while you call is routed to your local network crisis center. Hear some [...]
Finding Your Balance Could Lower Your Risk of Death
A new study out of Brazil shows that being able to stand on one leg for at least 10 seconds is linked to having a lower risk of death over the next seven years. Researchers have found that people who were middle-aged or older who could not perform the 10-second standing test were almost four times as likely to die of any cause in the coming years. While it has been known that falls are a major cause of injury and death worldwide, this new study has shed light on falls not being the only problem of having poor balance. Improving nonaerobic fitness (balance, flexibility, and muscle strength) can help mitigate not only falls, but [...]
Just how accurate are rapid antigen tests? Two testing experts explain the latest data
Once in short supply, rapid antigen tests are now available throughout the U.S. Nathaniel Hafer, UMass Chan Medical School and Apurv Soni, UMass Chan Medical School As of May 2022, the U.S. is experiencing another uptick in the number of COVID-19 cases. High rates of infection in Europe and Asia, along with the continued emergence of new sub-variants, such as omicron BA.4 and BA.5, raise concerns that another surge could be on the way. Even though demand for COVID-19 tests greatly overwhelmed supply earlier in the pandemic, rapid home tests are more available today. While home tests provide a quick, accurate result, the flip side is that many test results are no longer reported [...]
Value-Based Health Care & Medicare – Weighing the Pros and Cons
Value-based care has become a hot topic in the health care industry. The model of paying providers bonuses for better patient health outcomes and penalizing them for poor outcomes may seem like a great idea and one that would encourage a more holistic approach to patient care. Some health care experts have concerns about what this means for people on Medicare Advantage (MA), though; specifically, there may be more focus on costs and less focus on quality. Janice Horowitz, author of Health Your Self, has three primary concerns when it comes to value-based care in MA plans: Restrictions on where you can go for treatment – Value-based care is built on having one general primary-care [...]
Medicare Surprise: Drug Plan Prices Touted During Open Enrollment Can Rise Within a Month
By Susan Jaffe May 3, 2022 Something strange happened between the time Linda Griffith signed up for a new Medicare prescription drug plan during last fall’s enrollment period and when she tried to fill her first prescription in January. She picked a Humana drug plan for its low prices, with help from her longtime insurance agent and Medicare’s Plan Finder, an online pricing tool for comparing a dizzying array of options. But instead of the $70.09 she expected to pay for her dextroamphetamine, used to treat attention-deficit/hyperactivity disorder, her pharmacist told her she owed $275.90. “I didn’t pick it up because I thought something was wrong,” said Griffith, 73, a retired construction company accountant who [...]
Blood Sugar Testing to Manage Type 2 Diabetes in Patients Who Don’t Need Insulin
Checking your blood sugar daily may not help you manage your type 2 diabetes. If you have type 2 diabetes, it’s important to keep the amount of glucose, or sugar, in your blood at a healthy level. Many patients check their blood sugar at home each day. Patients place a drop of blood from their fingertip onto a test strip; then they insert the strip into a home glucose meter. This test measures your blood sugar level at that moment. People who use insulin check their blood sugar often so that they know how much insulin to take. But if you don’t use insulin, recent research shows that daily blood sugar testing may not [...]
Advocate for Your Health!
Written by Orlando A. Torres, a DPC Patient Ambassador from Guaynabo, Puerto Rico Last year, I participated in my first Dialysis Patient Citizens (DPC) virtual Fly-In. DPC is an advocacy organization that represents all kidney patients in our community. The Fly-In was a virtual event where kidney patients, along with DPC staff, and other advocates, engaged in conversations with Congress members and their staffers in relation to new legislation to benefit renal patients. We discussed the concept of the Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act that extended Medicare coverage of life saving immunosuppressive medications for the life of the kidney transplant. This bill, which was signed into law, will take [...]
Telehealth with a Mental Health Professional: What to Know Before You Start
By Kirsten Weir If you or a family member are managing chronic kidney disease, you’re probably thinking a lot about physical health—the health of the kidney and the rest of the body. Caring for your mental health is just as important. And with telehealth options that let you see a mental health professional from your home, it’s more convenient than ever. “The increased availability and acceptance of telehealth might be one of the few positive changes to come out of the [COVID-19] pandemic,” says Amy Walters, PhD, a clinical health psychologist and the director of Behavioral Health Services for St. Luke's Humphreys Diabetes Center. There are very good reasons to establish care with a mental [...]
Exercise for Both Physical and Mental Health
It is well known that exercise is important to maintain physical health, but new studies have shown that the benefits of exercise extend to mental health as well. Researchers looked at 15 existing studies that contain data on exercise and depression and have found a correlation between depression risk and physical activity. Even when someone wasn’t exercising as intensely or as often as advised by the US Department of Health and Human Services, there were still significant mental health benefits. The 15 studies used, which included over 191,000 participants total, found that people who did half the recommended amount of physical activity had an 18% lower risk of depression, and people who did the full [...]
DPC’s State Advocacy Efforts Flourish with Elevated Voice of DPC Patient Ambassadors
Image: Medigap champion Kentucky State Rep. Tom Burch and Elizabeth Lively, DPC Eastern Region Advocacy Director By Kelly Goss, J.D., LL.M., Western Region Advocacy Director and Elizabeth Lively, Eastern Region Advocacy Director, Dialysis Patient Citizens (DPC) It’s been a busy start in 2022 for DPC’s state advocacy efforts. Many states are holding shorter legislative sessions due to the upcoming primary elections, and several bills impacting dialysis patients have been introduced and are moving quickly through the legislative process. Legislation to expand Medigap access has been introduced in Arizona, Kentucky, Louisiana, Maryland, Nebraska, New Jersey, Rhode Island, Vermont, and Wisconsin. Improving access to affordable Medicare Supplement (Medigap) plans is a top policy priority for DPC, and [...]
Falling by the Wayside? Falls Prevention in Dialysis
By Laura Plantinga, PhD, Bernard Jaar, MD, MPH, and C. Barrett Bowling, MD, MSPH Why are dialysis patients at particular risk for falls? Studies show that approximately one-quarter of dialysis patients fall every year, meaning that they are about three times more likely to fall in any given year, compared to the general population. While older age certainly plays a role, there are several other factors that put dialysis patients — regardless of age — at higher risk for falls. In fact, most falls probably result from a combination of factors, usually a combination of long-term “predisposing” risk factors and short-term “precipitating” factors. For dialysis patients, predisposing factors include health conditions like nerve [...]
The Courage to Self-Cannulate – Taking Control Means Less Pain, More Independence
By Michelle Carver, Vice President Clinical Service Initiatives at Fresenius Kidney Care If the idea of self-cannulating every time you dialyze seems impossible, you are not alone. Many people fear needles, especially the large ones used for dialysis. But trust me, when you learn to do it, you’ll wonder why you ever doubted yourself. It gives you control, may make your access site last longer and, believe it or not, hurt less. One of my dialysis patients compared it to putting a cotton-tipped swab in your ear – would you rather do it yourself or have someone else do it? Only you – not your care provider – can feel both ends of [...]
