News & Events
Discover new information and educational offerings that we provide. Explore our newsletters, blogs and upcoming webinars/conference calls.
Contents:
Following a Diet as a Transplant Patient
After you receive a transplant, it is possible that many of the diet restrictions you had during dialysis will disappear. This however, doesn’t mean that proper nutrition is any less important. Also, if you have other conditions like hypertension and diabetes, you will need to continue following those diet restrictions. Taking immunosuppressants and anti-rejection medications. (1) To keep your new organ healthy, you will need to take an immunosuppressant drug. Just like the name sounds it suppresses your body’s immune system response to your new organ. Even with careful matching your body won’t recognize the new kidney as its own and will raise your defenses to get rid of it. The side effects of the medications [...]
Questions Patients Should Ask Their Healthcare Providers
It is critical to be an active and engaged participant in your own care. Reading this article will help you make sure you are getting the care you need. Any time new medicines or tests are ordered for you, it is important to ask questions. It can be intimidating to ask doctors or nurses these questions, but you are not able to make informed decisions without all of the facts. The Agency for Healthcare Research and Quality's (AHRQ), part of the part of the Department of Health and Human Services, was created to help with this process. The AHRQ has developed a patient guide of questions to help start the conversation with all of your [...]
Medicare by the Letter
Part A Medicare part A is designed to help cover expenses for institutional care. These mean hospitals, skilled nursing facilities after a hospital stay, hospice and home health care. For people who paid Medicare taxes (or their spouse did) while working this coverage does not cost any money. A person might also be able to buy this coverage if they are disabled and meet residency requirements. People who are receiving disability from Social Security or the Railroad Retirement Board will automatically receive information near the time they will become eligible for Medicare. Those who are not receiving retirement benefits should contact Medicare 3 months before they turn 65. Even if a person does not [...]
The Medicare “Donut Hole”
The Coverage Gap The way Medicare Part D was designed there was a planned coverage gap, which has become known as "the donut hole". This gap has caused a great deal of confusion and higher than expected out of pocket costs for medications. When do you reach the gap? The gap begins when a person reaches a predetermined amount during the year based on average retail cost of drugs. In 2011, that amount is set at $2840. Since Medicare drug plans negotiate for a lower price the average retail cost is not what you actually paid out of pocket. Every drug plan can have a different negotiated amount so the same drug may cost different [...]
Medicare and the Part D Donut Hole
An ounce of prevention is worth a pound of cure? This saying, made famous by Benjamin Franklin, is as true today as it was in the 1700's. Preventative care and early treatment can impact the outcome of most diseases. Mammograms and prostate screening are effective tools against cancer Sunscreens and limiting outdoor exposure to direct sunlight are effective methods to lower the risk for skin cancers The proper use of medication can also prevent conditions from forming or stop existing conditions from worsening. A potential growing gap is forming between what the doctor orders and what the patient may or may not be taking. According to the Journal of the American Medical Association (JAMA) one [...]
Dual Eligibility Medicare/Medicaid
Dual Eligibility refers to a person being eligible in some way for both Medicare and Medicaid. Medicare is a federal program while Medicaid is a state program that is available to those with low income and/or resources. Medicare and Medicaid Medicare covers acute care services and Medicaid covers Medicare premiums and cost sharing expenses. Medicaid may also cover expenses for long term care. There are different types of eligibility and this link goes to a report with a table that outlines the differences http://www.medpac.gov/publications%5Ccongressional_reports%5CJune04_ch3.pdf Medicare is considered the primary insurer and covers medically necessary acute care services, including physician, hospital, hospice, SNF, home health services as well as durable medical equipment (DME). Medicaid is [...]
Medicare and ESRD
Medicare helps to pay for kidney dialysis as well as kidney transplants. Eligibility A person whose kidneys no longer work can get Medicare no matter what their age as long as they meet other criteria. You have worked long enough to qualify for retirement benefits from Social Security, the Railroad Retirement Board, or as a government employee You are already receiving retirement benefits You are the spouse or child or a person who meets either of the above criteria In order to receive full benefits you must apply for both Medicare Part A and B and wait the required amount of time. If you don't qualify for Medicare, you may be able to get [...]
Medicare 101
Medicare Overview Most Americans have heard of Medicare, approximately 45 million people were receiving Medicare benefits in 2008. The Centers for Medicare and Medicaid Services (CMS) has predicted that there will be 78 million people eligible for the program by the year 2030. It might be expected that Medicare is very well understood, but the reality is that there are many pieces and parts that can be very confusing to the average person. A recent search on the internet for the term “Medicare” returned more than 16 million results in less than 1/10th of a second. It would take a person a really long time to read through all of those references. We hope to [...]
Kidney Patients and the Donut Hole
Can the Medicare "Donut Hole" Affect Kidney Patients? The short answer to this question is "maybe". The longer answer reveals that the gap affects some Medicare recipients more than others. A closer look will help to explain the reason why these two answers are different and how your patient may be affected. What is it? The "donut hole" is a gap in prescription drug coverage under Medicare. This gap begins when a person reaches a predetermined amount during the year based on average retail cost of drugs. In 2011 the gap begins when a person spends $2840 in actual out of pocket drug costs in a year. They reach the other side when their costs [...]
Taking Care of Yourself When You Have Chronic Kidney Disease
Taking Time for Fun With or without chronic kidney disease (CKD), life is what you make it. Some patients with CKD may choose to withdraw. Others may choose to do as much as possible and live life to the fullest. The choice is yours. Maybe you want to spend more time with family and friends. If so, plan an outing with them. They’ll appreciate your effort and you can feel good about taking charge. Decide what is most important to you now. Then take the steps necessary to make it happen. Tips for Coping You might feel like you are no longer in charge of your life, but the truth is, you’re probably finding ways [...]
Managing Stage 5 Chronic Kidney Disease
As you are being treated for your chronic kidney disease (CKD) Stage 5, there are 2 areas of concern that you and your renal (kidney) care team should discuss. Diet Following a renal-friendly diet can help limit the amount of waste in your body, which will aid in your treatment. You and your renal dietitian can work together to monitor the foods you eat and the fluids you drink. Some things you may discuss include Limiting fluids Avoiding salt Being aware of hidden phosphorus Sticking to the diet you and your dietitian create may not only help you feel better, it may help make your treatments more comfortable, as limiting sodium, and therefore fluids, can [...]
Keeping a Food Diary and Tips for Eating Out
Food Diary A food diary is an easy way to monitor the foods and liquids in your diet. The diary can help you identify trouble spots and make quick fixes. Your renal dietitian can help you get a food diary or you can check for one online. Food labels can help you with your food diary and help you choose healthier, kidney-friendly foods. Talk to your renal dietitian about what to look for before you shop. Since imbalances of minerals such as phosphorus and potassium are a concern for patients on dialysis, ask your renal dietitian how many milligrams (mg) of these minerals you should have each day. Remember that “percent daily values” on products [...]
Be a Part of Your Kidney Care Team
Communicating Effectively with Your Kidney Care Team You go to dialysis and stay for the entire session. You take your medication as directed by your doctor. You follow your kidney care team’s instructions. Is there anything else you can do to manage your condition? There is. Learn to talk and work with your kidney care team so you understand their expectations and they understand yours. Communicating with your kidney care team is more than just listening to them. It’s asking questions, letting them know your thoughts, and taking action. Be specific when talking with your kidney care team and Write down your most important questions or concerns, and ask them at the beginning of your [...]
Care for Your Overall Health
Preventive Screenings Part of managing chronic kidney disease (CKD) is keeping up with medical screenings. Talk with your doctor every January about “preventive maintenance” screenings you’ll need for the coming year, and mark them on a calendar. The tests you need depend on your age, your health, and whether you are male or female, so work with your nephrologist to ensure that your tests are done as necessary. Below are some examples of tests recommended by the US Department of Health & Human Services for the average person: General Tests Cholesterol test Blood pressure test Diabetes screening Fecal blood test Mental health screening (depression) Men Prostate exam Testicular exam Women Pap smear Thyroid test Bone [...]
Managing Your Time Wisely Around Treatment
Scheduling Activities and Tasks Your time at your dialysis treatment or doctor appointments is a great opportunity to take care of all the things that are a part of your daily life. Use this time to your advantage. Talk to others with kidney disease. They can be a source of strength and support, and they may also be able to give you tips on how to stick with your treatment plan Learn about something interesting like a new language or photography Bring a sketchbook and practice drawing Bring your kidney-friendly cookbook and plan meals for the week Strengthen your mind with brainteasers and puzzles Bring an audio book and a comfy pillow, and use the [...]
Transportation Tips for People with Chronic Kidney Disease
With chronic kidney disease (CKD) and any additional conditions you have, it may be a challenge getting to doctor appointments, the grocery store, and other places. However, there are some helpful options to consider: Ask a friend or family member to drive you to your doctor appointments Take a city bus, taxi, or other public transportation to get around Talk to your social worker for information about government-sponsored transportation for senior citizens or those who cannot get around easily While you’re at dialysis or with your support group, if you belong to one, talk to others with CKD about how they handle transportation challenges.
Traveling Tips for Individuals with Chronic Kidney Disease
The thought of travel may seem intimidating because of your dialysis schedule, but a little planning can make it easier. Ask your local dialysis center or your doctor’s office for help finding a dialysis center away from home. You or a loved one can also visit www.dialysisfinder.com or call 1-866-889-6019 toll free to speak with a dialysis placement specialist. If your dialysis is done at home, either with hemodialysis or peritoneal dialysis, you may also want to consider contacting one of the services listed above, as traveling with the necessary supplies or finding space to do your dialysis may be difficult. Be sure to make your appointments ahead of time and check with your insurance company to [...]
Know Your Kidney Care Team
Kidney Care Team Responsibilities Your doctor, renal dietitian, nurses, and technicians are all part of your kidney care team with you. Each team member has a unique set of responsibilities that can help care for your total health. In the chart below, match the team member with the appropriate description. TEAM MEMBER DESCRIPTION 1. Dialysis technician A. Helps find community resources (support, financial, etc.) to help you manage your chronic kidney disease 2. General practitioner B. The most valuable member of your kidney care team; responsible for following the treatment plan 3. Nephrologist C. Monitors your dialysis treatment and handles any other dialysis issues you may have 4. Pharmacist D. Checks your health and how [...]
Tips for Communicating with Your Kidney Care Team
It’s easy to get confused when you’re trying to talk with your kidney care team. Sometimes they use complicated, unfamiliar terms. But being able to communicate effectively with your kidney care team can help you have some control over your health care. One way to help you communicate effectively is to take P.A.R.T.: Prepare. Make a list of important questions or concerns, and bring these up at the beginning of your visit. Ask. Ask questions regarding tests, treatments, and any follow-up steps that are necessary. Make sure you understand the doctor’s answers. If you don’t, ask until you do. Repeat. Once you have gotten the information from your doctor, repeat some of the key points. This will help [...]
Health Information Trackers
Lab Values You should have your lab work done on a regular basis to help keep track of your progress. You may be tested for the following at different times: Kidney function Phosphorus Potassium Blood pressure Diabetes control Anemia Bone health Nutrition Depending on what your doctor wants to do and any other conditions you may have, he or she may request other labs. Consider making a chart for all your lab values, including phosphorus, or ask your nurse or renal dietitian if he or she has a chart you can use. It can help you follow your progress. Medication Schedule You’re not alone in taking several kinds of medicine. Sometimes, it can be tough [...]
