News & Events
Discover new information and educational offerings that we provide. Explore our newsletters, blogs and upcoming webinars/conference calls.
Contents:
First Education Call of 2018: Advocacy 101
Have you ever wondered what goes in to being a political advocate? Join us on January 25 at 2:00 PM Eastern to hear from Dialysis Patient Citizens' Congressional Relations Director and a DPC board member discuss what it takes to become politically active and what you can do to join the advocacy movement.
Renal Friendly Ginger Cookies
These ginger cookies are exceptionally magical for the holidays with their golden sprinkles and perfect soft, chewy center. Swapping out kidney-friendly honey for the traditional molasses drops the potassium by just about 100 mg without sacrificing flavor. Magical Ginger Cookies for The Holidays Serves: 24 Cookies Ingredients 2-1/4 cups all-purpose white flour 2 teaspoons ground ginger 1 teaspoon baking soda ¾ teaspoon ground cinnamon ½ teaspoon ground cloves ¾ cup butter 1-1/8 cups granulated sugar 2 egg whites ¼ cup honey Nutrition Information Serving size: 1 cookie Calories: 138 | Fat: 6 g | Phosphorus: 15 mg | Potassium: 24 mg |Carbohydrates: 20 g | Sodium: 59 mg | Protein: 1.5 g | Get the full recipe here.
Genetic Causes of Kidney Disease Call Recording Available
The call recording for November is now available! You can view the call in it's entirety below. After viewing the call please feel free to provide feedback.
November is Diabetes Awareness Month
If you have diabetes you are at a higher risk for kidney disease, especially if you have high glucose and high blood pressure. Approximately 1 in 4 adults with diabetes will also develop kidney disease. Your chances increase if you smoke, are overweight, have heart disease, have a family member with kidney disease and you don’t exercise or follow your diabetes food plan. Many people are not aware that they have kidney disease and would benefit from being tested for it. To keep your kidneys as healthy as you can, work with your health care team to keep your glucose and blood pressure within acceptable levels. It is also important to follow the appropriate food [...]
Make Your Own Super Cider
Fall temperatures have arrived in the DC area and many places around the country! This can only mean one thing... toasty warm apple cider is at the ready! Jessiana from KidneyGrub.com provides a great kidney friendly recipe for those who want to enjoy the best flavors fall has to offer. Make Your Own Super Cider! Naturally Kidney Friendly Serves: A LOT Apple cider is naturally a kidney friendly drink due to its low potassium content. Cut back on sugar and keep portion size reasonable if you're watching carb intake Ingredients 10 apples, quartered ½ cup white sugar 1 tablespoon ground cinnamon 1 tablespoon ground allspice (nutmeg, ginger, star anise are other spices that taste [...]
Investigación Clínica 101: Participar en un Ensayo
English Version Escrito por Kurt Mussina, MBA, Investigación Renal Frenova ¿Qué es la investigación clínica? Mucho antes de que un medicamento sea aprobado por la Administración de Alimentos y Medicamentos de EE. UU. Y puesto en el mercado, se somete a pruebas rigurosas para garantizar que sea seguro y efectivo, un proceso que puede llevar muchos años. Probar medicamentos nuevos y / o ya aprobados en personas es lo que llamamos investigación clínica. Aunque hay muchos tipos diferentes de ensayos clínicos, me estoy centrando aquí en el desarrollo clínico y el proceso de aprobación de medicamentos y dispositivos, en particular. La investigación clínica es vital para encontrar formas de mejorar la calidad de vida [...]
Clinical Research 101: Participating in a Trial
EN ESPAÑOL By Kurt Mussina, MBA, Frenova Renal Research What Is Clinical Research? Long before a medicine is approved by the U.S. Food and Drug Administration and put on the market, it undergoes rigorous testing to ensure it is safe and effective — a process that can take many years. Testing new and/or already approved medicines in people is what we call clinical research. Although there are many different types of clinical trials, I am focusing here on the clinical development and approval process for drugs and devices, in particular. Clinical research is vital to finding ways to improve quality of life and to finding cures for diseases. It gives researchers all kinds of [...]
When You Have Lost That Loving Feeling: Sex and Intimacy on Dialysis
By Erich Ditschman “Well, hello, Mr. Ditschman. How is your sex life?” This is one greeting I have never heard in my dialysis clinic. Okay, well maybe by Michael in the waiting room. And yes, I did blush. But, I never heard this once from my doctor, nurse, dietitian or social worker. In my 17-years on dialysis, sex has not been that big of a concern for my medical team, certainly not as big as keeping me alive. If you check out your dialysis clinic’s website, you will probably find a link near the bottom of the page to a “Sexuality on Chronic Kidney Disease” page. Here you might be reminded that you have been [...]
The Kidney Citizen Issue 7
An issue dedicated to Fabry disease, with tips on social media, new kidney disease legislation and more!
Medicare’s Open Enrollment Period: October 15 – December 7
If you have End-Stage Renal Disease (ESRD) and are enrolled in Medicare, you most likely have Original Medicare Part A and Part B. Part A covers hospital insurance and Part B covers medical insurance. Most people with ESRD are not currently able to get Medicare Part C, also known as Medicare Advantage, which combines Parts A and B (and sometimes Part D). Part D is a prescription drug plan. It is a separate plan that people with ESRD can purchase to help pay for outpatient prescription drugs. If you have Original Medicare Part A and Part B, you do not have to do anything during the Medicare open enrollment period. However, if you have Part [...]
National Disability Employment Awareness Month
October is National Disability Employment Awareness Month. The purpose of National Disability Employment Awareness Month is to educate about disability employment issues and celebrate the many and varied contributions of America's workers with disabilities. Held annually, National Disability Employment Awareness Month is led by the U.S. Department of Labor's Office of Disability Employment Policy, but its true spirit lies in the many observances held at the grassroots level across the nation every year. Employers of all sizes and in all industries, are encouraged to participate in NDEAM. For specific ideas about how your employer can support National Disability Employment Awareness Month, visit www.dol.gov/ndeam. Suggestions range from simple, such as putting up a poster, to comprehensive, such as [...]
Next Education Call: Safe or Scary? Navigating the Grocery Store
Is grocery shopping for your renal diet a chore you silently suffer through? Do you work hard and do your best to sort through the multitude of confusing labels, marketing messages, and hundreds of products, but still feel like you're unsure about your choices? Join us for our October webinar on how to successfully and joyfully navigate the grocery store to find delicious kidney-friendly choices. When: October 18 at 3:00 PM Eastern Where: Online at www.dpcedcenter.org/education-call or by phone 1-877-399-5186;433-459-5474
Honey-Garlic Low Sodium Marinated Kebabs
Kebabs are good all year round. These marinated low sodium kebabs give ample opportunity to ramp up vegetable intake in the most delicious and delightful way! Low potassium vegetables such as onion and peppers pair perfectly with the sweet and savory chicken to make this dinner a real home-run. This kebab recipe was a snap to put together. We used red and yellow peppers, both of which are low in potassium. We also used marinated chicken breasts and basted the kebabs in the marinade before grilling to perfection. Alternatively, you could also use pork. If you want to go totally plant-based, marinated tofu or tempeh would make a great stand-in for the chicken. We like [...]
