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Why You Should Take A Peek At Your Doctor’s Notes On Your Health

2024-03-28T20:59:04-04:00July 5th, 2019|Categories: Diagnosis of Kidney Disease, eNews|

By Victoria Knight, Kaiser Health News When Pamela DeSalvo read the clinical note from her doctor’s visit, the words on the page hit her hard: “clinically morbidly obese.” She knew she was overweight, but seeing those three words together shocked her. It also inspired her to start losing weight. “I needed to see it in black and white, what I actually in my heart already knew. It forced me to get honest with myself,” DeSalvo said. “Reading that note saved my life.” Studies show that, indeed, reading your doctor’s notes can improve your health. DeSalvo lives in Metuchen, NJ, and works [...]

A Young Man’s Life-Changing Experience with both Heart and Kidney Disease

2024-03-28T20:59:05-04:00June 28th, 2019|Categories: Diagnosis of Kidney Disease, eNews, Kidney Transplant, Webinar|

Bill Coon became a two-time heart and kidney transplant recipient in his 20s. During the webinar, he will share experiences from his 70-day hospital stay and recovery from a heart and kidney transplant to help others learn how to improve their patient experience. He will also provide insight from his personal experience on what one might expect during post-transplant recovery.

Kidney Disease and HIV

2024-03-28T20:59:06-04:00June 13th, 2019|Categories: Early Intervention, eNews, Lifestyle, Physical Health, Sex and Intimacy, What Causes Kidney Disease|

People with HIV are more likely to develop chronic kidney disease. In addition, some HIV medications can affect the kidneys. Getting tested for HIV, understanding your risk, and living a healthy life are steps you can make to better control your health. National HIV Testing Day is June 27, and the DPC Education Center encourages everyone to get tested for HIV. HIV (human immunodeficiency virus) is the virus that causes AIDS. The only way to know if you have HIV is to get tested. Many people with HIV don’t have any symptoms. In the United States, 1 in 7 people living [...]

Input Needed for Pediatric CKD Booklet

2024-03-28T20:59:09-04:00May 20th, 2019|Categories: About DPC Ed Center, eNews, Pediatric Kidney Disease|

The DPC Education Center is developing a pediatric booklet for tweens and teens about having kidney disease and its treatment. If you have been living with kidney disease since childhood or are a parent of a child with kidney disease, we’d appreciate your response to this short survey by June 21st. Thanks for your input! If you were diagnosed with kidney disease as a child, click here. If you are a parent of a child with kidney disease, click here.

Premature Birth Increases Kidney Disease Risk

2024-03-28T20:59:10-04:00May 16th, 2019|Categories: Diagnosis of Kidney Disease, eNews, Pediatric Kidney Disease|

Researchers analyzed over four million singleton live births in Sweden during 1973-2014 and found the risk for chronic kidney disease (CKD) was doubled among births before 37 weeks of gestation and tripled among births before 28 weeks. Additionally, researchers found that the risk increased by four percent per premature week. Scientists compared the data to siblings born full-term and found the increased risk for kidney disease was not present among the siblings. The researchers concluded, "Preterm and early term birth are strong risk factors for the development of CKD from childhood into mid-adulthood. People born prematurely need long term follow-up for [...]

Psychosocial Factors Affecting Children and Families Living with Chronic Illness

2024-03-28T20:59:12-04:00May 6th, 2019|Categories: eNews, Lifestyle, Mental Health, Pediatric Kidney Disease, Support, Webinar|

During this webinar, Amy Walters, PhD, Clinical Psychologist will discuss: 1) the psychological and emotional side effects of chronic illness on children and families, 2) how illness impacts different stages of childhood development, 3) common concerns reported by parents and children and 4) ways to support children and their families in coping with chronic illness. About the Presenter Amy Walters, PhD, is a clinical psychologist and the Director of Behavioral Health Services for St. Luke’s Humphreys Diabetes Center in Boise, Idaho. Dr. Walters works with patients to overcome barriers to behavioral change, learn to cope with chronic illness, and address issues [...]

Knowledge is Key for CKD and ESRD Patients

2024-03-28T20:59:12-04:00May 2nd, 2019|Categories: Employment, eNews, Nutrition, Pediatric Kidney Disease, Treatment, Webinar, What Causes Kidney Disease|

Print out the flier At the Dialysis Patient Citizens Education Center we believe it is extremely important to educate kidney patients at all stages of kidney disease as well as their family members. We offer free, monthly webinars and conference calls on an assortment of topics related to kidney care. We work hard to help fill in the gaps for people living with kidney disease who need to learn more about their disease, treatments and quality of life to enable them to be key members of their health care team. Included is a list of educational topics for the [...]

Living with Kidney Disease: Tips for Teens on How to Cope

2024-03-28T20:59:14-04:00April 22nd, 2019|Categories: eNews, Mental Health, Pediatric Kidney Disease|

By Elizabeth Lewan, Communications & Grassroots Program Coordinator at the American Psychological Association Your kidneys have many functions in the body and play an important role in your overall health and wellness. They help the body eliminate harmful toxins by filtering waste and extra fluid from your blood, control blood pressure and keep your bones healthy. Although you have been diagnosed with chronic kidney disease, you can still live a meaningful and healthy life. You may be feeling scared or unsure about your health or the changes happening to your body. It may seem like you’re on an emotional roller coaster, [...]

My Personal Experience with a Rare Condition

2024-03-28T20:59:17-04:00March 29th, 2019|Categories: Diagnosis of Kidney Disease, In-Center Hemodialysis, Lifestyle, Physical Health, The Kidney Citizen|Tags: |

By Mark Scirocco, Patient Ambassador I have been on in-center hemodialysis for three years. It was a rough start, as I went through 11 chest catheters in a little over a year. Two of them just fell out while I was sitting at home; the others got clogged. The last one almost killed me, stopping fluid in my upper body and head. My fistula was barely ready when they took that one out and placed a stent in my chest to allow fluid past my upper body. Three months after starting my fistula, I needed a fistulogram to open it up. [...]

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