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H.R. 1676 – The Jack Reynolds Memorial Medigap Expansion Act

2024-03-28T20:58:49-04:00December 17th, 2021|Categories: Costs for Treatment, Quality of Life, The Kidney Citizen|

By Megan Hashbarger, Vice President of Government Relations Earlier this year, The Jack Reynolds Memorial Medigap Expansion Act (H.R. 1676) was reintroduced by Congresswoman Cynthia Axne (D-IA-03) to ensure all End Stage Renal Disease (ESRD) patients have access to Medigap. This Congress, we were very pleased she was joined by Congresswoman Jaime Herrera Beutler (R-WA-03) in leading this effort. Ensuring all ESRD patients have access to Medigap is extremely important to help patients cover the high costs of care and to improve their access to transplantation. Medigap policies are standardized, private insurance policies that cover costs not covered by Medicare, such [...]

Improving Equity in Dialysis Treatments and Transplants

2024-03-28T20:58:50-04:00December 7th, 2021|Categories: Dialysis, eNews, Kidney Transplant, Treatment|

Earlier this month the U.S. Department of Health & Human Services (HHS) announced that it is seeking comments on future rulemaking to support the President’s executive orders to advance health equity and improve health outcomes for people in need of dialysis treatment and transplants. HHS Secretary, Xavier Becerra stated, “We want to hear from diverse stakeholders, especially the patients and their families. Your feedback is essential to our work in ensuring equal access to vital resources.” HHS acknowledged that both Black and Latino individuals are more likely to have kidney failure than white individuals in the United States (almost 4 times [...]

Transplant Patients Could Have a New Type of Donor in the Future

2024-03-28T20:58:53-04:00November 1st, 2021|Categories: eNews, Kidney Transplant|

During a surgery that took place in September 2021 at NYU Langone Health in New York City, a kidney that was grown in a genetically altered pig was transplanted into a human patient. The patient, who was brain dead and who’s family consented to the surgery, had the kidney attached to the blood vessels in the upper leg outside of the abdomen. It quickly began functioning normally and the entire procedure went better than expected. Although the patient was only followed for 54 hours post-surgery and the research behind the procedure has not been peer-reviewed or published in a medical journal, [...]

COVID-19 Vaccines for Immunocompromised People

2024-03-28T20:58:53-04:00October 22nd, 2021|Categories: eNews, Immunizations, Kidney Transplant, Staying Healthy|

As the COVID-19 pandemic continues, ongoing studies help inform healthcare professionals about the different immune responses and reactions among various groups within the population. Data has shown that people who are moderately to severely immunocompromised are especially vulnerable to the virus due to the inability to build the same level of immunity after vaccination as non-immunocompromised people. Small studies have also found that immunocompromised people made up a large portion of breakthrough cases requiring hospitalization, suggesting they could be more likely to transmit COVID-19 to other members of their household. Given this information, the CDC recommends that moderately to severely immunocompromised [...]

DPC Education Center to Become a Member of the TAQIL Leadership Coordinating Council with HSAG

2024-03-28T20:58:56-04:00October 12th, 2021|Categories: eNews, Kidney Transplant, News & Events|

In September, The DPC Education Center signed a letter of commitment to become a member of the TAQIL  Leadership Coordinating Council with the Health Services Advisory Group (HSAG) which had been awarded the CMS Technical Assistance, Quality Improvement, and Learning (TAQIL) Contract. As a member of the Council, we agree to  support their efforts to increase recovery of kidneys by organ procurement organizations and utilization of kidneys by transplant centers. This includes the aims of increasing deceased donor transplants and reducing kidney discard rate. The Dialysis Patient Citizens Education Center recognizes the importance of all parties working together to improve the [...]

Sifting Through the Many Options for Integrative Chronic Pain Treatment

2024-03-28T20:58:57-04:00October 8th, 2021|Categories: eNews, Lifestyle, Medication, Mental Health, News & Events, Physical Health, Quality of Life, Staying Healthy, Stress Management|

For the more than 50 million Americans who experience chronic pain every day, trying to create a treatment plan can be an exhausting battle. Due to the complex nature and differences in individuals’ pain, it is usually most effect to have an integrated or multidisciplinary treatment plan, which is the use of different methods of treatments together in order to manage/reduce pain. Although there are a wide range of integrated treatments that exist, multidisciplinary specialists are hard to come by, causing most of the research to fall onto the patient. While it is still important to work closely with your doctor [...]

We’re Masking Up Again, But is a Cloth Mask Good Enough?

2024-03-28T20:58:58-04:00October 5th, 2021|Categories: eNews, Immunizations, Mental Health, News & Events, Quality of Life, Staying Healthy|Tags: |

During the start of the pandemic, when both surgical masks and N95s were in short supply, cloth masks began to make an appearance. Even when the supply of disposable masks began to improve and were more widely available to the public again, cloth masks continued to grow in popularity due to their ability to be personalized to the wearer. Like a certain sports team? You could find a mask with their logo. Want everyone to know your affinity for gardening? Wear a mask printed with different plants and flowers on it. Now that we are having to mask back up due [...]

Understanding the New Talk Around “Booster Shots”

2024-03-28T20:58:58-04:00October 1st, 2021|Categories: eNews, Immunizations, News & Events, Staying Healthy|Tags: |

You may have heard the term a third dose or a booster shot for the COVID19 vaccine. To clarify, The CDC had already approved a third dose of the Pfizer-BioNTech COVID-19 vaccine or Moderna COVID-19 vaccine for people with moderately to severely compromised immune systems.  This includes people who have received an organ transplant and are taking medication to suppress their immune system. Learn more about receiving a third dose at: https://www.cdc.gov/coronavirus/2019-ncov/vaccines/recommendations/immuno.html. Now, the CDC has approved a booster shot for both certain populations and for people  who work in high risk work settings who have received the two-dose  Pfizer-BioNTech COVID-19 vaccine. This [...]

For Dialysis Patients: Update on COVID-19, Delta Variant and Vaccination

2024-03-28T20:58:59-04:00September 4th, 2021|Categories: eNews, Immunizations, Physical Health, Staying Healthy|Tags: |

Written by: Alan S. Kliger, M.D., Clinical Professor of Medicine, Yale School of Medicine, and Co-Chair, American Society of Nephrology (ASN) COVID-19 Response Team. COVID-19 continues to be a dangerous infection for dialysis patients. Here are some facts every patient should know: Why should I get vaccinated now if I’ve been waiting so far? The vaccines clearly protect dialysis patients, particularly by greatly reducing hospitalizations, complications and death from COVID-19 infection. If you’ve been waiting to see if the vaccine is safe, there have now been hundreds of millions of people vaccinated, with almost no severe complications from the vaccine. Did [...]

FDA Authorizes Third Dose “Booster Shots” of Pfizer and Moderna Vaccines for Immunocompromised Individuals

2024-03-28T20:59:01-04:00August 13th, 2021|Categories: eNews, Immunizations, Staying Healthy|Tags: |

On Thursday, August 12, 2021, the FDA updated the emergency-use authorization (EUA) for the Pfizer-BioNTech and Moderna Covid-19 vaccines. Americans with compromised immune systems are now eligible for a third dose, or booster shot, of these vaccines. This broadened EUA includes individuals who are kidney transplant recipients or have other diagnosed conditions that are considered to be of “equivalent level of immunocompromise.” This decision was made after a thorough review of the available data, in order to allow doctors to boost the immunity of some of their most vulnerable patients who need extra protection from COVID-19. Many transplant patients have been [...]

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