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DPC’s State Advocacy Efforts Flourish with Elevated Voice of DPC Patient Ambassadors

2024-03-28T20:58:09-04:00April 25th, 2022|Categories: Costs for Treatment, Kidney Transplant, The Kidney Citizen, Uncategorized|

Image: Medigap champion Kentucky State Rep. Tom Burch and Elizabeth Lively, DPC Eastern Region Advocacy Director By Kelly Goss, J.D., LL.M., Western Region Advocacy Director and Elizabeth Lively, Eastern Region Advocacy Director, Dialysis Patient Citizens (DPC) It’s been a busy start in 2022 for DPC’s state advocacy efforts. Many states are holding shorter legislative sessions due to the upcoming primary elections, and several bills impacting dialysis patients have been introduced and are moving quickly through the legislative process. Legislation to expand Medigap access has been introduced in Arizona, Kentucky, Louisiana, Maryland, Nebraska, New Jersey, Rhode Island, Vermont, and Wisconsin. Improving access [...]

My Experience as a Kidney Patient in CKD, Dialysis, and Transplant

2024-03-28T20:58:16-04:00April 25th, 2022|Categories: Diagnosis of Kidney Disease, Dialysis, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Stages of Kidney Disease, The Kidney Citizen|

By Orlando A. Torres After a 30-year battle with chronic kidney disease (CKD), in 2016 I had Stage Five kidney failure. This was the end of a three-decade battle which took countless hours of treatment. For years, I had been followed medically for CKD, having a special test done monthly and eating a special diet. As a CKD patient, my condition affected other organs in my body. The number of regular activities I could do also declined, but I never quit and refused to accept those limitations. I never let CKD limit what I did. I think it is [...]

COVID-19 and Patients with Kidney Disease on Dialysis

2024-03-28T20:58:35-04:00February 25th, 2022|Categories: Dialysis, Employment, eNews, Immunizations, Kidney Transplant, Lifestyle, Mental Health|Tags: |

By Alan Kliger, MD Updated March 18, 2022 I am writing this mid-March 2022, as the last peak of COVID infection with the Omicron variant has rapidly fallen in every US state, but wastewater analysis has shown places in the US where virus infection in some communities is rising again. A new sub-variant, BA.2 is making up about 23% of cases. Abroad, the United Kingdom is seeing increasing hospitalizations with COVID infection, and many locations in the far east have raging infections. The effects of the surge in Omicron cases around the world this past winter have deeply affected [...]

Kidneys: Holy Grail Pursuit of Regenerative Medicine

2024-03-28T20:58:48-04:00December 17th, 2021|Categories: Kidney Transplant, The Kidney Citizen, Treatment|

By Anthony Atala, MD, Director, Wake Forest Institute for Regenerative Medicine Recently, two teams of scientists from the Wake Forest Institute for Regenerative Medicine (WFIRM) won first and second place in NASA's Vascular Tissue Challenge, a prize competition that aims to accelerate tissue-engineering innovations. Vascularization of engineered solid organs – like the kidney – is part of the Holy Grail pursuit of regenerative medicine. Being able to create organs with the needed blood vessel structure means the organs are supplied with needed nutrients and oxygen to survive when implanted. The two Wake Forest teams both used 3D bioprinting technology to create [...]

Improving Equity in Dialysis Treatments and Transplants

2024-03-28T20:58:50-04:00December 7th, 2021|Categories: Dialysis, eNews, Kidney Transplant, Treatment|

Earlier this month the U.S. Department of Health & Human Services (HHS) announced that it is seeking comments on future rulemaking to support the President’s executive orders to advance health equity and improve health outcomes for people in need of dialysis treatment and transplants. HHS Secretary, Xavier Becerra stated, “We want to hear from diverse stakeholders, especially the patients and their families. Your feedback is essential to our work in ensuring equal access to vital resources.” HHS acknowledged that both Black and Latino individuals are more likely to have kidney failure than white individuals in the United States (almost 4 times [...]

Transplant Patients Could Have a New Type of Donor in the Future

2024-03-28T20:58:53-04:00November 1st, 2021|Categories: eNews, Kidney Transplant|

During a surgery that took place in September 2021 at NYU Langone Health in New York City, a kidney that was grown in a genetically altered pig was transplanted into a human patient. The patient, who was brain dead and who’s family consented to the surgery, had the kidney attached to the blood vessels in the upper leg outside of the abdomen. It quickly began functioning normally and the entire procedure went better than expected. Although the patient was only followed for 54 hours post-surgery and the research behind the procedure has not been peer-reviewed or published in a medical journal, [...]

COVID-19 Vaccines for Immunocompromised People

2024-03-28T20:58:53-04:00October 22nd, 2021|Categories: eNews, Immunizations, Kidney Transplant, Staying Healthy|

As the COVID-19 pandemic continues, ongoing studies help inform healthcare professionals about the different immune responses and reactions among various groups within the population. Data has shown that people who are moderately to severely immunocompromised are especially vulnerable to the virus due to the inability to build the same level of immunity after vaccination as non-immunocompromised people. Small studies have also found that immunocompromised people made up a large portion of breakthrough cases requiring hospitalization, suggesting they could be more likely to transmit COVID-19 to other members of their household. Given this information, the CDC recommends that moderately to severely immunocompromised [...]

DPC Education Center to Become a Member of the TAQIL Leadership Coordinating Council with HSAG

2024-03-28T20:58:56-04:00October 12th, 2021|Categories: eNews, Kidney Transplant, News & Events|

In September, The DPC Education Center signed a letter of commitment to become a member of the TAQIL  Leadership Coordinating Council with the Health Services Advisory Group (HSAG) which had been awarded the CMS Technical Assistance, Quality Improvement, and Learning (TAQIL) Contract. As a member of the Council, we agree to  support their efforts to increase recovery of kidneys by organ procurement organizations and utilization of kidneys by transplant centers. This includes the aims of increasing deceased donor transplants and reducing kidney discard rate. The Dialysis Patient Citizens Education Center recognizes the importance of all parties working together to improve the [...]

Ask Your Nephrologist: What is happening to my skin and nails?

2024-03-28T20:59:08-04:00May 19th, 2021|Categories: Dialysis, Kidney Transplant, Physical Health, The Kidney Citizen|

Keith A. Bellovich, DO There is a broad range of skin manifestations when having to depend on dialysis. Skin disorders can affect a patient's quality of life and can negatively impact their mental and physical health. Itching (uremic pruritus) is by far the most common complaint that patients suffer. But dry skin (xerosis cutis) and skin discoloration are also common complaints in patient with severe loss of kidney function. Dry skin is caused by reduction in the size of sweat glands and atrophy of sebaceous or oil producing glands. Dry skin increases the susceptibility to infections and this is aggravated by [...]

Getting Fit After Transplant

2024-03-28T20:59:13-04:00April 19th, 2021|Categories: Kidney Transplant, Lifestyle, Physical Health, The Kidney Citizen|

By Collette Powers, MA, RDN, LDN, ACSM EP First of all, let us start off by saying a huge congratulations! Whether you are preparing for a transplant or already received a kidney transplant, you have taken a pro-active step in your own healthcare. This is a major accomplishment and one worth much recognition. Kudos to you! As part of the transplant journey, you learn a great deal of information regarding the transplant process. Topics may range between diet management, medication management and organ infection/rejection prevention to name a few, but what about physical activity? Can you exercise after receiving your new [...]

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