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The Importance of Immunizations for People with Kidney Disease

2024-11-13T09:58:16-05:00November 4th, 2024|Categories: Dialysis, eNews, Hemodialysis, Home Hemodialysis, Immunizations, In-Center Hemodialysis, Peritoneal Dialysis, Physical Health, Staying Healthy|

Living with kidney disease presents unique health challenges, including an increased susceptibility to infections. Immunizations play a crucial role in protecting people with kidney disease, including those on dialysis or with a kidney transplant, from preventable diseases. This article will discuss the importance of vaccines in general and those protecting against respiratory illness specifically, the risks associated with not being vaccinated, and concerns related to misinformation on vaccination decisions.

My New Normal

2024-09-23T13:54:24-04:00September 23rd, 2024|Categories: Dialysis, Mental Health, Peritoneal Dialysis, Physical Health, The Kidney Citizen, Treatment|

By Karim Rattani, DPC Patient Ambassador My journey with End Stage Renal Disease (ESRD) has included much suffering, but it has also shaped me into a stronger, more loving man. Throughout all of it, I’ve adjusted to a “new normal” with ESRD and found that life can still be fulfilling and full of possibilities. I worked as a chauffeur and ran a public transportation Limousine service business just before the COVID-19 pandemic began in 2020. Once the pandemic hit, most of the businesses were shutdown with an executive order and therefore I, like many others, also lost most [...]

Sometimes It’s a Blessing in Disguise

2024-09-23T13:54:22-04:00September 23rd, 2024|Categories: Dialysis, Hemodialysis, Home Hemodialysis, In-Center Hemodialysis, Lifestyle, Mental Health, Peritoneal Dialysis, Physical Health, Quality of Life, The Kidney Citizen|

By Layce Ryan, DPC Patient Ambassador I remember when I first learned about my kidney disease. I was a college student living in Kalamazoo, Michigan, when I suddenly fell very ill. After running some tests, the doctors diagnosed me with focal segmental glomerulosclerosis (FSGS), a type of chronic kidney disease (CKD), which is the early stages of full kidney failure, also known as End Stage Renal Disease (ESRD). In an instant, my life changed dramatically, and I was faced with the reality that the worst was yet to come. It would be 10 years before I began dialysis [...]

I Can Do Anything I Set My Mind To

2024-09-23T13:54:16-04:00September 23rd, 2024|Categories: Nutrition, Peritoneal Dialysis, The Kidney Citizen|

By Stephanie Dixon, DPC Patient Ambassador When I was diagnosed with End Stage Renal Disease (ESRD) in 2001, I felt like my life was over. Many newly diagnosed ESRD patients share this fear, but it's possible to live a full and happy life on dialysis. While ESRD requires adjusting to a "new normal," this journey provides opportunities for growth and valuable lessons. When I was first diagnosed with ESRD in 2001, I was immediately concerned for my two children, Jason and Joy. As the year passed, my body shut down, and I could no longer walk. Finally, I [...]

DPC’s 2024 Advocacy Day and 20th Anniversary Celebration

2024-09-23T13:54:12-04:00September 23rd, 2024|Categories: Costs for Treatment, Dialysis, Hemodialysis, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Peritoneal Dialysis, Quality of Life, The Kidney Citizen, Treatment|

Megan Hashbarger, DPC Vice President of Government Relations This past May, DPC hosted our annual Advocacy Day in Washington, D.C., where we brought together patients, family members, and care givers to meet with their Members of Congress to elevate the patient story for dialysis patients. This year, we had 65 advocates attend, representing 25 states, who had almost 80 Congressional meetings. Our patients spoke to Congressional offices asking them to support H.R. 6860 – The Restore Protections for Dialysis Patients Act and H.R. 5027/S. 4469 – The Chronic Kidney Disease Improvement in Research and Treatment Act. These two [...]

DPC’s 2023 Advocacy Day

2024-04-26T15:39:19-04:00April 26th, 2024|Categories: Dialysis, Hemodialysis, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Peritoneal Dialysis, The Kidney Citizen|

Megan Hashbarger, DPC Vice President of Government Relations In October 2023, DPC held its’ annual Advocacy Day in Washington, D.C. This year, we were able to bring over 50 patients to D.C. from 23 different states. Unfortunately, due to Covid complications and for the best safety of our patients, we did end up having to make their Hill meetings virtual. Despite this, we were still able to meet with almost 60 Congressional offices about issues facing dialysis patients such as the need for access to Medigap and private insurance. We were also able to host a day of [...]

A Look at Home Hemodialysis

2024-03-28T20:57:18-04:00August 3rd, 2023|Categories: Dialysis, eNews, Hemodialysis, Home Hemodialysis, Peritoneal Dialysis, Quality of Life, Treatment|

Summary by V. Scantlebury, MD, FACS Home dialysis modalities, which include home hemodialysis (HHD) and peritoneal dialysis (PD), offer several benefits for patients with end-stage kidney disease (ESKD). Home dialysis is associated with improvements in blood pressure, less issues with mineral metabolism, better sleep quality and improvement of left heart enlargement. It also allows patients the flexibility of adjusting their own dialysis schedule with more time and less cost of traveling to the dialysis center. However, despite these advantages, only 2% of all dialysis patients in the d U. S.  and 3-6% in Canada are on HHD.  The authors from a [...]

Travel Lovers, Don’t Let Dialysis Slow You Down

2024-03-28T20:58:46-04:00December 17th, 2021|Categories: Home Hemodialysis, Peritoneal Dialysis, Quality of Life, The Kidney Citizen, Treatment|

By Vanessa Evans, Sr. Manager, Patient Communities and Advocacy at Fresenius Medical Care North America and DPC Board Member Brenda and Bernie Alvey are the consummate camper travelers, crisscrossing the United States and taking in sights from the St. Louis Arch to the Grand Canyon. But their camper has a few unusual features, including two recliners, extra outlets, and a homemade stand to accommodate Brenda’s portable home hemodialysis equipment. The Alveys have always loved traveling, but they thought their trips had come to an end when Brenda was diagnosed with Membranoproliferative Glomerulonephritis (MPGN), an autoimmune disease that destroys kidney [...]

There Is No Place Like Home

2024-03-28T20:59:12-04:00April 19th, 2021|Categories: Home Hemodialysis, Peritoneal Dialysis, The Kidney Citizen|

By Shaminder Gupta, MD, Nephrologist End Stage Renal Disease (ESRD) is a life changing diagnosis and impacts both the patient and the family. While waiting for renal transplantation, renal replacement therapy (RRT) is required to sustain life. RRT, also known as dialysis, can be provided either in-center or at home. Home therapies can either be via peritoneum (PD) or via fistula (HHD). Patients are concerned about their own abilities to provide this life sustaining therapy on their own. This is natural and should be anticipated as a barrier. Most of us, including medical professionals, would also share these apprehensions. Success at [...]

Participating in a Clinical Trial

2024-03-28T20:59:56-04:00August 21st, 2020|Categories: Additional Resources, Early Intervention, eNews, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Peritoneal Dialysis, Treatment, Webinar|

New medical treatments and products are continually being developed for people living with kidney disease. Part of the development process for high quality, scientific, and safe options is through research to test the treatment or product before it becomes available on the market. This phase of research is called a clinical trial or a clinical research project. People can volunteer to be part of a clinical trial if they meet the specific requirements for the study. You might consider participating in the research process for many reasons including if it has a personal meaning for you or if you want to [...]

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