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Andrew Carr Knows There’s More for Him

2024-03-28T20:57:24-04:00June 14th, 2023|Categories: Dialysis, Kidney Transplant, Mental Health, Stress Management, The Kidney Citizen|

Andrew Carr Kidney disease has been part of Andrew’s life since he was 7 years old, when he was diagnosed with Hydronephrosis. Now 29, Andrew has had kidney disease for the majority of his life, but he’s guided by the principle that his kidney disease doesn’t control his life, he does. Andrew began dialysis treatments when he was 19. While Andrew’s exposure to kidney disease happened so early in his life, he does not remember how he felt about it at its outset, but vividly remembers the beginning of his dialysis treatments. For three-and-a-half years Andrew persevered through [...]

The Making of An Advocate

2024-03-28T20:57:25-04:00June 14th, 2023|Categories: Dialysis, Kidney Transplant, Medication, Mental Health, Support, The Kidney Citizen, Treatment|

Gene Blankenship, DPC Board of Directors Thinking about Life Sitting in my recliner watching the leaves fall like big fat orange snowflakes, I see the trees begin to change colors. My immediate first thought is “How many more seasons of change will I see? Is this my last fall”? Polycystic Kidney Disease (PKD) is a constant passenger in my life. Anytime you have a passenger with you for long periods of time, you will go through events together that stamp your life. For example, as a child, I watched Eugene Taylor Jr., my dad, hook himself up every [...]

For Mike Guffey, Working Was Key to Staying Positive

2024-03-28T20:57:27-04:00June 14th, 2023|Categories: Diagnosis of Kidney Disease, Dialysis, Employment, Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Mental Health, Quality of Life, The Kidney Citizen|

Mike Guffey When Mike Guffey began dialysis treatments in 2008, one of his top priorities was to ensure he had a reason to keep moving forward, something to look forward to when he got out of bed which would allow him to push through his treatment regimen. For him, that meant returning to work as quickly as he could after starting his treatments, especially given how quickly he crashed into life on dialysis. Normally based in Kansas City, Mike was working temporarily as a project manager in Colorado when he noticed something was off. He went to the [...]

Black and Hispanic Patients on Dialysis Have Higher Rates of Staph Bloodstream Infections

2024-03-28T20:57:27-04:00June 14th, 2023|Categories: Diagnosis of Kidney Disease, Dialysis, Early Intervention, Stages of Kidney Disease, Staying Healthy, The Kidney Citizen|

Actions to Reduce Inequities Can Save Lives CDC Newsroom Media Statement – Originally published February 6, 2023 Contact: Media Relations, (404) 639-3286 Adults on dialysis treatment for end-stage kidney disease were 100 times more likely to have a Staphylococcus aureus (staph) bloodstream infection than adults not on dialysis during 2017–2020, according to a new Vital Signs report released today by the Centers for Disease Control and Prevention (CDC). More than half of people in the U.S. receiving dialysis belong to a racial or ethnic minority group—about 1 in every 3 people receiving dialysis is Black and 1 in every 5 [...]

Ask the Doctor

2024-03-28T20:57:29-04:00June 14th, 2023|Categories: Costs for Treatment, Dialysis, Hemodialysis, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Medication, The Kidney Citizen|

Velma Scantlebury, MD, DPC Education Center Health Care Consultant 1. Four hours is too long for me to sit in dialysis. Do I have to attend every treatment? Answer: Think of dialysis as being the only way to get the toxins out of your body from the food that you consume everyday - three times a day. When you lose kidney function and are on dialysis, you are usually then only cleansing your body every other day. Those toxins will build up and can cause your body to deteriorate over time. Missing dialysis is harmful to your body. [...]

Staph Infections in Hemodialysis Patients

2024-03-28T20:57:36-04:00March 7th, 2023|Categories: eNews, Hemodialysis|

A new study, looking at data from the 2020 National Healthcare Safety Network (NHSN) and the 2017-2020 Emerging Infections Program (EIP), has found that Hispanic patients on hemodialysis had a 40% higher risk of having a Staphylococcus aureus (staph) bloodstream infection than white patients. This is on top of all hemodialysis patients being 100 times more likely to have an S. aureus bloodstream infection than non-dialysis patients. Data also showed that the S. aureus bloodstream infection rate was strongly associated with vascular access via central venous catheter over graft or fistulas. Higher rates of S. aureus bloodstream infections have also been [...]

A Career and Dialysis Become a Way of Life

2024-03-28T20:57:39-04:00February 1st, 2023|Categories: Dialysis, Employment, eNews, Hemodialysis, In-Center Hemodialysis, Physical Health|

By Gene Blankenship, DPC Board Member I was 42 years old when I crashed into dialysis, though my family obviously knew about my kidney disease. I also worked full time and so the next step was to tell my employer, OPEA. I cannot compliment my employer enough. From the second I told my Supervisor and our Executive Director it was, as the cool kids say, "cake". First words out of their collective mouths were "How can we help?'  My doctor and I had already discussed what I could do while still keeping my health a priority. This made [...]

Just a Dad with Kidney Disease

2024-03-28T20:57:40-04:00January 11th, 2023|Categories: Dialysis, eNews, In-Center Hemodialysis, Kidney Transplant, Quality of Life|

By Gene Blankenship, DPC Board Member Being a dad with kidney disease is something that I never imagined when I was younger.  Actually, I never once pictured myself as a person who would be challenged by kidney failure, even though I watched my dad "Big Gene" struggle with end stage renal failure all my life until his death when I was 12 years old. Now, my weeks each have an automatic 16 hours at the dialysis center (20 hours with travel) during “prime time” completely scheduled for me until I receive a transplant.  Those 20 hours are the perfect [...]

Improving Pregnancy Outcomes for Women on Dialysis or with a Kidney Transplant

2024-03-28T20:57:43-04:00December 1st, 2022|Categories: Dialysis, eNews, Kidney Transplant, Physical Health|

New research suggests that pregnancy outcomes are improving for women on dialysis or with a kidney transplant. Hayet Baouche, MPH, of APHP-Necker-Enfants Malades Hospital, REIN Registry in Paris, France and colleagues reported in Clinical Kidney Journal that from 2010 – 2020, the frequency women on dialysis becoming pregnant increased. There was a decrease in hypertensive disorders of pregnancy and polyhydramnios, as well as lower rates of neonatal and perinatal deaths compared to previous decades, likely attributed to advancements in obstetric and neonatal care, and progress in fetal monitoring and dialysis treatments. A systematic review of 14 retrospective and prospective studies [...]

Navigating a Renal Diet: Decoding the Mystery

2024-03-28T20:57:49-04:00October 27th, 2022|Categories: Dialysis, Kidney Transplant, Nutrition, Staying Healthy, The Kidney Citizen|

By Fanny Sung Whelan, MS, RDN, LDN How to navigate a renal diet based on your kidneys’ needs No matter what stage of kidney disease you’re in, all of the different diet recommendations can cause your head to spin. Pair it with other conditions you may have, and you’ve got a real recipe for confusion! So how can you sort out all of the differences in what you can and can’t eat? Here we are going to outline the diet guidelines for the different stages of kidney disease. Disclaimer: it is important to discuss any diet changes with your [...]

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