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The Importance of Immunizations for People with Kidney Disease

2024-11-13T09:58:16-05:00November 4th, 2024|Categories: Dialysis, eNews, Hemodialysis, Home Hemodialysis, Immunizations, In-Center Hemodialysis, Peritoneal Dialysis, Physical Health, Staying Healthy|

Living with kidney disease presents unique health challenges, including an increased susceptibility to infections. Immunizations play a crucial role in protecting people with kidney disease, including those on dialysis or with a kidney transplant, from preventable diseases. This article will discuss the importance of vaccines in general and those protecting against respiratory illness specifically, the risks associated with not being vaccinated, and concerns related to misinformation on vaccination decisions.

My New Normal

2024-09-23T13:54:24-04:00September 23rd, 2024|Categories: Dialysis, Mental Health, Peritoneal Dialysis, Physical Health, The Kidney Citizen, Treatment|

By Karim Rattani, DPC Patient Ambassador My journey with End Stage Renal Disease (ESRD) has included much suffering, but it has also shaped me into a stronger, more loving man. Throughout all of it, I’ve adjusted to a “new normal” with ESRD and found that life can still be fulfilling and full of possibilities. I worked as a chauffeur and ran a public transportation Limousine service business just before the COVID-19 pandemic began in 2020. Once the pandemic hit, most of the businesses were shutdown with an executive order and therefore I, like many others, also lost most [...]

Sometimes It’s a Blessing in Disguise

2024-09-23T13:54:22-04:00September 23rd, 2024|Categories: Dialysis, Hemodialysis, Home Hemodialysis, In-Center Hemodialysis, Lifestyle, Mental Health, Peritoneal Dialysis, Physical Health, Quality of Life, The Kidney Citizen|

By Layce Ryan, DPC Patient Ambassador I remember when I first learned about my kidney disease. I was a college student living in Kalamazoo, Michigan, when I suddenly fell very ill. After running some tests, the doctors diagnosed me with focal segmental glomerulosclerosis (FSGS), a type of chronic kidney disease (CKD), which is the early stages of full kidney failure, also known as End Stage Renal Disease (ESRD). In an instant, my life changed dramatically, and I was faced with the reality that the worst was yet to come. It would be 10 years before I began dialysis [...]

Ask the Doctor September 2024

2024-09-23T13:54:19-04:00September 23rd, 2024|Categories: Dialysis, Hemodialysis, Kidney Transplant, Medication, Physical Health, The Kidney Citizen|

Velma Scantlebury, MD, DPC Education Center Health Care Consultant 1. I have been on dialysis for three months. After treatment in the dialysis facility, I am tired and feel bloated. When will I begin to feel better? Dialysis removes excess fluid and waste products. This happens by shifting fluid from one compartment so that the dialysis process can remove the extra fluid. This «dialysis fatigue» is experienced by about 50% of patients. Anemia, electrolyte imbalance, and stress can also be contributors to the condition. Many recommend getting plenty of rest, eating more protein, eating a balanced diet, and [...]

I Can Do Anything I Set My Mind To

2024-09-23T13:54:16-04:00September 23rd, 2024|Categories: Nutrition, Peritoneal Dialysis, The Kidney Citizen|

By Stephanie Dixon, DPC Patient Ambassador When I was diagnosed with End Stage Renal Disease (ESRD) in 2001, I felt like my life was over. Many newly diagnosed ESRD patients share this fear, but it's possible to live a full and happy life on dialysis. While ESRD requires adjusting to a "new normal," this journey provides opportunities for growth and valuable lessons. When I was first diagnosed with ESRD in 2001, I was immediately concerned for my two children, Jason and Joy. As the year passed, my body shut down, and I could no longer walk. Finally, I [...]

DPC’s 2024 Advocacy Day and 20th Anniversary Celebration

2024-09-23T13:54:12-04:00September 23rd, 2024|Categories: Costs for Treatment, Dialysis, Hemodialysis, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Peritoneal Dialysis, Quality of Life, The Kidney Citizen, Treatment|

Megan Hashbarger, DPC Vice President of Government Relations This past May, DPC hosted our annual Advocacy Day in Washington, D.C., where we brought together patients, family members, and care givers to meet with their Members of Congress to elevate the patient story for dialysis patients. This year, we had 65 advocates attend, representing 25 states, who had almost 80 Congressional meetings. Our patients spoke to Congressional offices asking them to support H.R. 6860 – The Restore Protections for Dialysis Patients Act and H.R. 5027/S. 4469 – The Chronic Kidney Disease Improvement in Research and Treatment Act. These two [...]

Don’t Sweat It! – Tips for Renal Patients During Summer Heat

2024-07-10T15:38:16-04:00July 3rd, 2024|Categories: Dialysis, eNews, Kidney Transplant, Lifestyle, Physical Health, Quality of Life, Staying Healthy|

Summer is here and this time of year can be especially challenging for dialysis patients!  No matter how thirsty you are, you must still monitor your fluid intake. At the Dialysis Patient Citizens Education Center, we are continuously researching and sharing information that can improve the quality of life of renal patients. This article focuses on fluid intake and thirst tips and is provided by Fresenius Kidney Care (freseniuskidneycare.com) and DaVita (davita.com). The following information is provided by Fresenius Kidney Care. Dialysis works to remove excess fluid from your blood, so it’s important to manage your fluid intake. Fluids are typically [...]

DPC Raises Alarm on Health Workforce Shortages

2024-04-26T15:39:25-04:00April 26th, 2024|Categories: Dialysis, Hemodialysis, In-Center Hemodialysis, Kidney Transplant, The Kidney Citizen, Treatment|

Jackson Williams, DPC Vice President of Public Policy Fifteen years ago, the Institute of Medicine report, “Retooling for an Aging America: Building the Health Care Workforce,” warned of looming health workforce shortages due to demographic changes. Has the era foreseen by that report arrived? Media reports indicate numerous instances of hospitals declaring “contingency standards of care” or ordering ambulance diversions due to staffing shortages. Average emergency department visit times have risen to 160 minutes, up from 143 minutes in 2020, according to government statistics. Medicare beneficiaries who are intermittent users of health care facilities will probably not know [...]

DPC’s 2023 Advocacy Day

2024-04-26T15:39:19-04:00April 26th, 2024|Categories: Dialysis, Hemodialysis, Home Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Peritoneal Dialysis, The Kidney Citizen|

Megan Hashbarger, DPC Vice President of Government Relations In October 2023, DPC held its’ annual Advocacy Day in Washington, D.C. This year, we were able to bring over 50 patients to D.C. from 23 different states. Unfortunately, due to Covid complications and for the best safety of our patients, we did end up having to make their Hill meetings virtual. Despite this, we were still able to meet with almost 60 Congressional offices about issues facing dialysis patients such as the need for access to Medigap and private insurance. We were also able to host a day of [...]

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