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Resources for People Living with Chronic Pain

2024-03-28T20:59:13-04:00April 29th, 2019|Categories: Additional Resources, eNews, Lifestyle, Physical Health|Tags: |

If you missed last week's webinar on Relieving Pain Through Laughter, the recording is now available. In addition, here is a list of resources for people living with chronic pain: Books Explain Pain, 2nd (2014) David Butler and G. Lorimer Moseley. NOI Publications. Painful yarns, Metaphors & stories to help understand the biology of pain. (2012). G. Lorimer Moseley. The Explain Pain Handbook: Protectometer. (2014). GL Moseley & DS Butler. Your Fibromyalgia Workbook, A Neuroscience Approach to the Understanding and Treatment of Fibromyalgia. (2013). Adriaan Louw.   Orthopedic Physical Therapy Products. Why Do I Hurt? A Patient Book about the Neuroscience of [...]

Martinlow Spaulding: Humorist, Activist and Family Man

2024-03-28T20:59:14-04:00April 15th, 2019|Categories: Blog, Humor and Laughter, Kidney Transplant, Lifestyle|Tags: |

April is National Donate Life Month, and it is also National Humor Month. Martinlow Spaulding, living with kidney disease for over 25 years, easily celebrates the significance of both. Spaulding is a transplant recipient who combines humor and laughter in his daily life. He tells a lot of jokes—some of them get a few giggles, and some of them get a few groans. But his positive attitude and outlook on life help him find the “funny” in a lot of situations. Spaulding, the youngest of five children, is the recipient of not one but two gifts of life—both donated by his [...]

Relieving Pain Through Laughter

2024-03-28T20:59:16-04:00April 8th, 2019|Categories: Humor and Laughter, Lifestyle, Physical Health, Webinar|Tags: |

Joyology is the lifestyle that skillfully blends laughter, humor, and attitudes to help recover from difficulties and re-awaken the joy of being alive. During this webinar you will: 1) learn about joyology as a lifestyle, 2) discover ways to manage pain and 3) understand how laughter can help ease pain. Presented by: Mary Laskin, MN, RN, ACNS-BC and Steve Wilson, Psychologist, The Joyologist

My Personal Experience with a Rare Condition

2024-03-28T20:59:17-04:00March 29th, 2019|Categories: Diagnosis of Kidney Disease, In-Center Hemodialysis, Lifestyle, Physical Health, The Kidney Citizen|Tags: |

By Mark Scirocco, Patient Ambassador I have been on in-center hemodialysis for three years. It was a rough start, as I went through 11 chest catheters in a little over a year. Two of them just fell out while I was sitting at home; the others got clogged. The last one almost killed me, stopping fluid in my upper body and head. My fistula was barely ready when they took that one out and placed a stent in my chest to allow fluid past my upper body. Three months after starting my fistula, I needed a fistulogram to open it up. [...]

Free Monthly Webinars/Conference Calls

2024-03-28T20:59:20-04:00March 21st, 2019|Categories: About DPC Ed Center, Costs for Treatment, Diagnosis of Kidney Disease, Early Intervention, Employment, Home Hemodialysis, Humor and Laughter, Immunizations, In-Center Hemodialysis, Kidney Transplant, Lifestyle, Medication, Mental Health, Music, Nutrition, Pediatric Kidney Disease, Peritoneal Dialysis, Physical Health, Sex and Intimacy, Stages of Kidney Disease, Stress Management, Support, Symptoms, The Kidney Citizen, Webinar, What Causes Kidney Disease|

The DPC Education Center invites people living with chronic kidney disease (CKD), end-stage renal disease (ESRD), their families and professional staff to join us for our monthly webinars. You can also join by phone or view the recordings online at a later time. The webinars are planned for the fourth Thursday of the month at 2 p.m. Eastern time zone, except for November and December when they will be held during the third week of the month. You can download monthly webinar fliers to share with others and/or register for webinars at www.dpcedcenter.org/news-events/education-webinars. Join by phone by calling 1-877- 399-5186 and [...]

Advance Care Planning

2024-03-28T20:59:22-04:00March 15th, 2019|Categories: Diagnosis of Kidney Disease, Lifestyle, The Kidney Citizen|Tags: |

By David Mahoney, MD As a member of Dialysis Patient Citizens, you have chosen to become involved, speak up for what is important to you and take charge of the management of your health. Dialysis modality, diet, medications, exercise, management of your other health-related issues, all require your informed decision-making and action. But despite this high level of involvement in their health care, few dialysis patients have addressed the issue of advance care planning. “I don’t want to talk about that now.” “That’s for sick people, and I am doing well.” “That really scares me.” “I am NOT ready to talk [...]

Growing Up On Dialysis

2024-03-28T20:59:28-04:00February 25th, 2019|Categories: Lifestyle, Pediatric Kidney Disease, The Kidney Citizen|Tags: |

By Julie Crandall, CBCS, CMAA, Patient Ambassador, DPC Education Center Board Member How was it to grow up with end-stage renal disease (ESRD)? Since I didn’t know any other way; for me, it was normal. I can tell you that in my case, my family was the most important people that helped me navigate childhood. It helped that they didn’t treat me like the ‘sick kid’ of the family; I was a daughter and a little sister. I didn’t know what to focus on for this article. It was difficult to narrow down my childhood with ESRD and dialysis to write [...]

Work Those Kidneys Out!

2024-03-28T20:59:29-04:00February 23rd, 2019|Categories: Early Intervention, Fact Sheet, Lifestyle, Physical Health, The Kidney Citizen|

By Collette Powers, MA, RDN, LDN, ACSM EP-C We have all heard it, and we all know it. We have been told from our doctor, a friend or a loved one. Whether it is for controlling high cholesterol, managing weight, reducing blood sugar or keeping our bodies healthy overall, we have all been told at some point we should exercise. But did you know exercise may help protect your kidneys too? Fatigue is a common struggle that many patients with chronic kidney disease (CKD) face. When we are tired, our instinct is to rest. However, over time, that “rest” can [...]

Airport Screening Resources for People with Disabilities or Medical Conditions

2025-01-30T16:08:18-05:00December 7th, 2018|Categories: eNews, Lifestyle, Quality of Life|Tags: |

There are airport screening resources available for people with disabilities and/or medical conditions that are planning to fly. These resources include: Contact information for TSA Cares where you can ask questions and express concerns related to airport screening Information about connecting with a Passenger Support Specialist and/or customer service manager at the airport (Note: the level of assistance will vary) Enrollment information for TSA Pre✓®, which may result in shorter lines and wait times at the airport Additional information about what to expect during the airport security screening process if you have a disability or medical condition A link to [...]

Bladder Health and Chronic Kidney Disease

2024-03-28T20:59:52-04:00November 10th, 2018|Categories: Early Intervention, eNews, Lifestyle, News & Events, Staying Healthy, Treatment|

November is Bladder Health Month. The bladder is part of the urinary system, which also includes the kidneys. Taking care of the bladder is important for individuals with kidney disease as infections in the bladder can spread to the kidneys, which can cause permanent damage to the kidneys. Additionally, diabetes, which is one of the leading causes of chronic kidney disease, can contribute towards bladder problems. The National Institute of Health has some resources on how the bladder changes as we age and ways to keep your bladder healthy. Check out the resources below: Bladder Health for Older Adults – Discusses [...]

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