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Patient Engagement: Can innovative techniques empower patients to better manage their kidney disease?

2024-03-28T21:06:24-04:00October 23rd, 2014|Categories: eNews, Lifestyle, Physical Health|Tags: |

A new buzzword popular among health care leaders is “patient engagement,” sometimes referred to as “beneficiary engagement” when referring to Medicare beneficiaries.  What does this concept mean for kidney patients?  In general, patient engagement refers to transforming patients from passive recipients of health care to active partners, with their providers, in self-management of their disease.  We often hear from veteran dialysis patients that success in avoiding complications depends on the patient taking on an active role in his or her health care and working with clinicians on a “two-way street.” While this kind of active engagement is certainly typical among the [...]

Don’t take Your Mental Health for Granted

2024-03-28T21:06:27-04:00September 18th, 2014|Categories: eNews, Lifestyle, Mental Health, Quality of Life|

End stage renal disease (ESRD) or kidney failure is the end of your kidney function, not your life.  As a result, the DPC Education Center entered into an exciting new collaboration with the American Psychological Association (APA).  We recently held our first joint webinar and Regional Meeting in Detroit. Click here to view the recorded webinar. The diagnosis of stage 5 kidney disease or ESRD can be devastating.  Grieving the loss of your kidney function is normal as long as it does not interfere with living your life to the fullest. Typically, the doctors focus on the physical aspects of your [...]

September is Disaster Preparedness Month

2024-03-28T21:06:28-04:00September 18th, 2014|Categories: eNews, Lifestyle, Quality of Life, Staying Healthy, Stress Management|Tags: |

Are you prepared for any disaster that might impact your life or your ability to dialyze?  Depending on where you live, there are many different types of disasters.  You and your family should have a plan in place and practice your plan so that when the need arises, you can stay calm and be prepared. You also should have alternative plans and specific means to communicate any changes that might occur.  Dialysis clinics are required to provide disaster plans to their patients and practice drills.  Your dialysis team will instruct you how to take yourself off of your dialysis machine if [...]

Exciting News from the Bloodstream Infection (BSI) Prevention Collaborative

2024-03-28T21:06:35-04:00January 23rd, 2014|Categories: eNews, Lifestyle|Tags: , , |

Since 2011, DPC has been involved with the BSI Prevention Collaborative and was the first patient group to participate and attended the inaugural meeting in November 2011. The primary goal of the collaborative is preventing bloodstream infections in hemodialysis patients with the secondary role of increasing awareness in the dialysis community. The group is open to most outpatient dialysis facilities throughout the United States and other community partners. Facilities that participate get access to best practices from experts at the Centers for Disease Control and Prevention (CDC) and from others who are directly applying safety precautions in their own clinic. Members [...]

Care for Your Overall Health

2024-03-28T21:07:25-04:00December 14th, 2012|Categories: Early Intervention, eNews, Immunizations, Lifestyle|

Preventive Screenings Part of managing chronic kidney disease (CKD) is keeping up with medical screenings. Talk with your doctor every January about “preventive maintenance” screenings you’ll need for the coming year, and mark them on a calendar. The tests you need depend on your age, your health, and whether you are male or female, so work with your nephrologist to ensure that your tests are done as necessary. Below are some examples of tests recommended by the US Department of Health & Human Services for the average person: General Tests Cholesterol test Blood pressure test Diabetes screening Fecal blood test Mental [...]

Transportation Tips for People with Chronic Kidney Disease

2024-03-28T21:07:27-04:00December 14th, 2012|Categories: eNews, Lifestyle, Quality of Life|

With chronic kidney disease (CKD) and any additional conditions you have, it may be a challenge getting to doctor appointments, the grocery store, and other places. However, there are some helpful options to consider: Ask a friend or family member to drive you to your doctor appointments Take a city bus, taxi, or other public transportation to get around Talk to your social worker for information about government-sponsored transportation for senior citizens or those who cannot get around easily While you’re at dialysis or with your support group, if you belong to one, talk to others with CKD about how they [...]

Traveling Tips for Individuals with Chronic Kidney Disease

2024-03-28T21:07:28-04:00December 14th, 2012|Categories: eNews, Lifestyle, Stress Management|Tags: |

The thought of travel may seem intimidating because of your dialysis schedule, but a little planning can make it easier. Ask your local dialysis center or your doctor’s office for help finding a dialysis center away from home. You or a loved one can also visit www.dialysisfinder.com or call 1-866-889-6019 toll free to speak with a dialysis placement specialist. If your dialysis is done at home, either with hemodialysis or peritoneal dialysis, you may also want to consider contacting one of the services listed above, as traveling with the necessary supplies or finding space to do your dialysis may be difficult. Be sure [...]

Health Information Trackers

2024-03-28T21:07:32-04:00December 14th, 2012|Categories: eNews, Lifestyle, Physical Health|

Lab Values You should have your lab work done on a regular basis to help keep track of your progress. You may be tested for the following at different times: Kidney function Phosphorus Potassium Blood pressure Diabetes control Anemia Bone health Nutrition Depending on what your doctor wants to do and any other conditions you may have, he or she may request other labs. Consider making a chart for all your lab values, including phosphorus, or ask your nurse or renal dietitian if he or she has a chart you can use. It can help you follow your progress. Medication Schedule [...]

Getting Assistance from Others

2024-03-28T21:07:33-04:00December 14th, 2012|Categories: eNews, Lifestyle, Stress Management|

Do you find it hard to ask for help when you need it? Try these ideas the next time you need a hand: Even though you don’t want to bother anyone, it’s not a good idea to begin your request with an apology. “I’m sorry to put you to so much trouble” sounds as if an awful chore lies ahead! Try being more specific: “I need help taking some clothes to a charity. Do you have about an hour to help me next Saturday?” When people ask what they can do to help you, give them a job: “Can you help [...]

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