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8 Things About Living with A Chronic Disease That Others May Not Understand

2024-03-28T21:00:57-04:00August 27th, 2019|Categories: eNews, Lifestyle, Mental Health, Physical Health, Stress Management|

"If you see us 'enjoying' ourselves, it doesn’t mean we aren’t sick." This is one of a handful of ideas shared by a woman who has lived with a chronic illness for the past 12 years. She decided to create a blog to share her experience and spread awareness about others that may be going through something similar. If there are friends or family in your life that are having trouble relating to what you are going through, it may be helpful to share this article with them. Or perhaps it will inspire you to put your thoughts on paper and [...]

Improve the Quality of Life for Dialysis Patients by Submitting Your Ideas in Prize Competition

2024-03-28T21:01:03-04:00July 19th, 2019|Categories: eNews, Lifestyle, Nutrition, Physical Health|

Sometimes the best solution to a problem comes from the people who live and experience the challenge every day. This is one approach that is being taken to help improve the lives of dialysis patients. The KidneyX: Patient Innovator Challenge is a contest where people can submit ideas to help those living with kidney disease, with the chance of receiving a monetary prize. The challenge is organized into two groups: Category 1: "Solutions in Practice," which are solutions already tried or put into practice Category 2: "New Ideas," which are solutions that have not yet been created or tried. If you need additional [...]

Kidney Disease and HIV

2024-03-28T20:59:06-04:00June 13th, 2019|Categories: Early Intervention, eNews, Lifestyle, Physical Health, Sex and Intimacy, What Causes Kidney Disease|

People with HIV are more likely to develop chronic kidney disease. In addition, some HIV medications can affect the kidneys. Getting tested for HIV, understanding your risk, and living a healthy life are steps you can make to better control your health. National HIV Testing Day is June 27, and the DPC Education Center encourages everyone to get tested for HIV. HIV (human immunodeficiency virus) is the virus that causes AIDS. The only way to know if you have HIV is to get tested. Many people with HIV don’t have any symptoms. In the United States, 1 in 7 people living [...]

Caregivers for People with Chronic Illness

2024-03-28T20:59:08-04:00May 31st, 2019|Categories: eNews, Fact Sheet, Lifestyle, Mental Health, Stress Management, Support|

By Amy Walters, PhD, Licensed Psychologist Below is a summary handout about understanding and helping the caregivers in our life. What We Know About Caregivers Report feeling overwhelmed, frustrated and lonely Report high levels of stress and depressed symptoms Are tired and sleep deprived Have higher rates of illness (2x higher) but seek medical attention less often Often neglect their own self care Experience more relationship conflicts Feel a sense of loss – independence, freedom, dreams for the future Attitude matters – those who believe they are not effective have higher levels of stress and depression Strong social support systems [...]

Older Americans: Connect, Create, Contribute

2024-03-28T20:59:11-04:00May 11th, 2019|Categories: About DPC Ed Center, eNews, Lifestyle, Quality of Life, Support|

Each year, more and more older adults are making a positive impact for dialysis patients across the country. As advocates, volunteers, employees, employers, educators, mentors and more, they offer insight and experience that benefit the entire community. That’s why Older Americans Month (OAM) has been recognizing the contributions of this growing population for 56 years. Led by the Administration for Community Living (ACL), each May OAM provides resources to help older Americans stay healthy and independent, and resources to help communities support and celebrate their diversity. This year’s OAM theme, Connect, Create, Contribute, encourages older adults and their communities to: Connect [...]

Psychosocial Factors Affecting Children and Families Living with Chronic Illness

2024-03-28T20:59:12-04:00May 6th, 2019|Categories: eNews, Lifestyle, Mental Health, Pediatric Kidney Disease, Support, Webinar|

During this webinar, Amy Walters, PhD, Clinical Psychologist will discuss: 1) the psychological and emotional side effects of chronic illness on children and families, 2) how illness impacts different stages of childhood development, 3) common concerns reported by parents and children and 4) ways to support children and their families in coping with chronic illness. About the Presenter Amy Walters, PhD, is a clinical psychologist and the Director of Behavioral Health Services for St. Luke’s Humphreys Diabetes Center in Boise, Idaho. Dr. Walters works with patients to overcome barriers to behavioral change, learn to cope with chronic illness, and address issues [...]

Resources for People Living with Chronic Pain

2024-03-28T20:59:13-04:00April 29th, 2019|Categories: Additional Resources, eNews, Lifestyle, Physical Health|Tags: |

If you missed last week's webinar on Relieving Pain Through Laughter, the recording is now available. In addition, here is a list of resources for people living with chronic pain: Books Explain Pain, 2nd (2014) David Butler and G. Lorimer Moseley. NOI Publications. Painful yarns, Metaphors & stories to help understand the biology of pain. (2012). G. Lorimer Moseley. The Explain Pain Handbook: Protectometer. (2014). GL Moseley & DS Butler. Your Fibromyalgia Workbook, A Neuroscience Approach to the Understanding and Treatment of Fibromyalgia. (2013). Adriaan Louw.   Orthopedic Physical Therapy Products. Why Do I Hurt? A Patient Book about the Neuroscience of [...]

Martinlow Spaulding: Humorist, Activist and Family Man

2024-03-28T20:59:14-04:00April 15th, 2019|Categories: Blog, Humor and Laughter, Kidney Transplant, Lifestyle|Tags: |

April is National Donate Life Month, and it is also National Humor Month. Martinlow Spaulding, living with kidney disease for over 25 years, easily celebrates the significance of both. Spaulding is a transplant recipient who combines humor and laughter in his daily life. He tells a lot of jokes—some of them get a few giggles, and some of them get a few groans. But his positive attitude and outlook on life help him find the “funny” in a lot of situations. Spaulding, the youngest of five children, is the recipient of not one but two gifts of life—both donated by his [...]

Relieving Pain Through Laughter

2024-03-28T20:59:16-04:00April 8th, 2019|Categories: Humor and Laughter, Lifestyle, Physical Health, Webinar|Tags: |

Joyology is the lifestyle that skillfully blends laughter, humor, and attitudes to help recover from difficulties and re-awaken the joy of being alive. During this webinar you will: 1) learn about joyology as a lifestyle, 2) discover ways to manage pain and 3) understand how laughter can help ease pain. Presented by: Mary Laskin, MN, RN, ACNS-BC and Steve Wilson, Psychologist, The Joyologist

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