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So, You’ve Been Vaccinated. Now What?

2024-03-28T20:59:21-04:00April 5th, 2021|Categories: Additional Resources, eNews, Immunizations|Tags: |

First of all, congratulations! It has been a long and difficult year for everyone, and finally having some protection against COVID-19 feels good. We still have a ways to go though, and since we are still learning about how the vaccines will affect the spread of the virus, it is important that everyone one keeps taking precautions – such as wearing a mask, staying 6 feet apart from others, and avoiding crowds or poorly ventilated indoor spaces. The CDC has also provided some recommendations to help with decision making in daily activities for people who have been vaccinated. The first thing [...]

Fabry Awareness Month

2024-03-28T20:59:22-04:00April 1st, 2021|Categories: Additional Resources, eNews, What Causes Kidney Disease|

April is Fabry Awareness Month, which brings attention to a rare disease that affects about 1 in 100,000 people. So, what is it? Fabry is an inherited genetic condition, caused by a mutation on the X chromosome in the GLA gene that leads to reduced levels of the enzyme alpha-galactosidase A (AGA) in the body. This means that the body cannot break down a certain type of fat, called globotriaosylceramide (GL-3), which then continues to build-up in a way that causes the blood vessels all over the body to become narrowed. This causes damage to tissues and organs, including your kidneys! [...]

Podcast: The Elephant in the Room – Fear & Uncertainty During COVID-19

2024-03-28T20:59:25-04:00March 4th, 2021|Categories: eNews, Mental Health, Support|Tags: |

At the end of last year, dialysis patients were invited to submit their questions about real-life issues during COVID-19. In this first episode of the new podcast, The Elephant in the Room, experts respond to patients’ letters, including Dale Lupu from George Washington School of Nursing, Liz Anderson, a long-time social worker (both of whom were presenters for the Ed Center’s January 2021 webinar), and a kidney patient with “lived experience” John Brandon Bayton, Jr. You can listen to the first episode of the podcast on Buzzsprout here: https://www.buzzsprout.com/1642372/7476073-episode-1-fear-uncertainty-during-covid-19

Join Us for Our New Patient Support Group!

2024-03-28T20:59:27-04:00February 11th, 2021|Categories: eNews, Mental Health, News & Events, Patient Support Group, Support|

In March we will be launching our first Patient Support Group meeting by telephone. Having a support group has been one of our goals for years and we are happy to announce it is now a reality. We chose to have the group meet by phone instead of online or in a Zoom meeting because we think most everyone has a phone. And we want the support group to be available to all patients at any stage of kidney disease and to their families. On the second Tuesday of each month, at 3:00 pm Eastern, you can call and join in [...]

Get Active in the New Year

2024-03-28T20:59:32-04:00January 12th, 2021|Categories: eNews, Online Courses, Physical Health|

With 2020 behind us, now is the time to plan your resolutions for 2021. Exercise has been shown to positively impact renal function among peritoneal dialysis patients, and the DPC Ed Center has a free course to help you set and reach your exercise goals. This course explains why exercise is important, how it benefits people living with kidney disease and how you can develop a personalized exercise program that will work for you. By the end of this course, you will be able to: Identify the four components of a well-balanced exercise program Develop a personalized exercise program Identify some [...]

“You Want to Slit My Throat?”: What is a Parathyroidectomy?

2024-03-28T20:59:33-04:00December 30th, 2020|Categories: Fact Sheet, Physical Health, The Kidney Citizen|

By Keith A. Bellovich, DO and Mirjana Dimitrijevic, MD Parathyroidectomy is the surgical removal of one or more of your parathyroid glands. It stems from the Greek ektomia = "cutting out" which means to surgically remove something from your body. The parathyroid glands are made of tissue slightly larger than a single grain of rice, located around your Adam’s apple that produce parathyroid hormone (PTH) and control the levels of calcium in your body. PTH stimulates the conversion of calcidiol (25-hydroxyvitamin D) to calcitriol (activated vitamin D) within kidney tubular cells, which leads to the absorption of calcium in your diet [...]

Are There Living Kidney Donor Registries?

2024-03-28T20:59:36-04:00December 11th, 2020|Categories: Additional Resources, Fact Sheet, Kidney Transplant, The Kidney Citizen|Tags: |

By Harvey Mysel I’ve often been asked: “Where can I register to get a living donor?” Unlike deceased donation where there’s one national list, (although you can multi-list because some areas have a shorter wait time) there’s no such list for someone looking for a living donor. You must find your own living donor. When you do have someone that is able to be a living donor, many are not compatible with their recipient. Thirty to 50 percent of donor/recipient pairs are not compatible with each other. In such a situation the incompatible donor could still help the person in need [...]

Make Your Wishes About You (My Way)

2024-03-28T20:59:37-04:00December 4th, 2020|Categories: Fact Sheet, The Kidney Citizen, Treatment|

By Elizabeth Anderson, LCSW, DSW and Dale Lupu, MPH, PhD When I was first told I had chronic kidney disease (CKD), I was grateful that there were lifesaving treatments, but I was also scared because I didn’t have a plan. I worried that I might be in pain or become a burden to my family. I felt better when I was able to discuss my desires and healthcare decisions with my family and healthcare team. What kind of medical care would you want if you were too ill to express your wishes? Like most people, you may not have thought about [...]

Having a Kidney Transplant During COVID-19

2024-03-28T20:59:40-04:00November 27th, 2020|Categories: Additional Resources, Fact Sheet, Kidney Transplant, Mental Health, Stress Management, Support, The Kidney Citizen|Tags: , |

By Jewel Edwards-Ashman I started the year 2020 anticipating that I’d enter kidney failure and have to undergo my second kidney transplant. But I didn’t expect to start doing home dialysis and eventually have transplant surgery in the middle of a pandemic. Transplant surgery in ordinary circumstances comes with a high level of stress and anxiety. Having a kidney transplant during a public health crisis only exacerbated those feelings for me. To reduce my stress and manage my emotions, here are three things I did: I prioritized self-care. Most Americans, even those who aren’t living with chronic illness, have been experiencing [...]

Older Americans Can Get Help with Their Homes

2024-03-28T20:59:41-04:00November 24th, 2020|Categories: Additional Resources, eNews, Lifestyle|

Habitat for Humanity has a program called Housing Plus/Aging in Place to help older Americans improve their home living conditions and quality of life. Rather than taking a one-size-fits-all approach, Habitat assesses and addresses the unique living needs of each person, which may include home repairs, installations of ramps and grab bars, and more. In addition, Habitat connects recipients with other services they need that may address health, isolation, hunger and transportation. Lookup your local Habitat for Humanity to ask about aging in place program availability in your community. Read the full article.

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