FacebookXYouTubeInstagramLinkedIn

Support Groups

2024-10-03T11:11:20-04:00October 3rd, 2024|Categories: eNews, Quality of Life, Resources, Support|

Coping with a chronic disease is not an easy task! The journey is challenging, tiring, frustrating--often depressing, and lonely. One can feel that no one is experiencing or understanding their respective circumstances. A support group is a confidential and safe place to share with others, as well as a place to develop a special and unique comradery with those who participate. The Dialysis Patient Citizens Education Center formed a support group called the “Kidney Chat”. The group meets every second Tuesday at 2:00 pm EST via telephone. The telephone number is (866) 230-9002; the code is 420 835 078#. Various guests, [...]

Merida Bourjolly: Taking Control of Her Care and Finding Meaning Through Advocacy

2024-04-26T15:34:31-04:00April 26th, 2024|Categories: Dialysis, Employment, Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Lifestyle, Physical Health, Quality of Life, Staying Healthy, Support, The Kidney Citizen|

Merida Bourjolly, President of DPC Education Center Board of Directors Merida Bourjolly had a kidney removed when she was just three weeks old, though it wouldn’t be until much later that her experience with dialysis would begin. By then, she already owned her own business and had both a teenage daughter and her mother to take care of at home, which meant starting dialysis came with big adjustments. She did her best to continue working five to six days a week like she had before, but found she was increasingly tired while styling her clients’ hair. Eventually, she [...]

For Gene Blankenship, Family is Everything

2024-04-26T15:34:00-04:00April 26th, 2024|Categories: Dialysis, Employment, Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Quality of Life, Support, The Kidney Citizen|

Eugene Blankenship, DPC Board of Directors Gene has had a front row seat to life with kidney disease for as long as he can remember. His entire family has been affected by kidney disease, and he was diagnosed himself in 2003. While it has come with challenges, Gene has continuously pushed forward, bolstered by the loving support of his family and those in the dialysis community he’s met along the way. After three years on dialysis, Gene was finally able to receive a kidney transplant this year. Persevering through dialysis treatments can take a toll, but Gene learned [...]

Knowledge to Empowerment

2024-04-26T15:33:39-04:00April 26th, 2024|Categories: Dialysis, Hemodialysis, In-Center Hemodialysis, Quality of Life, Support, The Kidney Citizen|

Nancy L. Scott, DPC Education Center Project Manager As I sat on the side of my hospital bed on a cold night in March of 2004, my heart was broken and it felt as though my time on the planet was almost over. I had just been diagnosed with END STAGE RENAL DISEASE. The word “end” means a final part of something, and I thought that something meant me. I had just retired and planned to enjoy life and travel as much as possible. These dreams had come to an end! (Little did I know at the time, [...]

DPC Education Center 2023 Review and 2024 Preview

2024-03-28T20:57:12-04:00January 11th, 2024|Categories: About DPC Ed Center, eNews, Patient Support Group, Quality of Life, Resources, Staying Healthy, The Kidney Citizen, Treatment|

GREETINGS! This past year was an exciting one for the Education Center. We ramped up our social media platforms, allowing more direct exposure and interaction with our audience, including monthly LIVEs on Instagram and Facebook. Dr. Velma Scantlebury, our medical consultant, was available on Instagram every first Wednesday and on Facebook every third Wednesday—both occurred at 12:30 pm. Our support group, the Kidney Chat, was the second Tuesday of each month by telephone. Nephrologists, nutritionists, and social workers (just to name a few) were guests on the call, and shared important information and resources with patients. We also published an informative [...]

Fighting Back Against Implicit Bias in Health Care

2024-03-28T20:57:23-04:00June 14th, 2023|Categories: Additional Resources, Mental Health, Physical Health, Quality of Life, The Kidney Citizen|

Tips for how to speak up and speak out against discrimination in a medical setting Kirsten Weir The receptionist requests two forms of identification from you, yet the White person in front of you required no identification to be verified. A nurse who uses a condescending tone of voice: “you people are all alike.” A doctor who doesn’t listen to you: Having just told the doctor you have knee problems, he recommended that you walk 30 minutes every day. Are they just having a bad day — or is it implicit bias? Implicit bias is an attitude or [...]

Four Things You Should Know About the New Medicare Dental Rule

2024-03-28T20:57:24-04:00June 14th, 2023|Categories: Additional Resources, Physical Health, The Kidney Citizen|

Andrea Moore, LMSW, Health Equity Specialist, Quality Insights Renal Network 5 1. Before January 1, 2023, Medicare would pay for a dental exam only for patients who were actively seeking a kidney transplant. Now, the new Medicare dental rule will pay for a dental exam and dental treatment (e.g., dental filling, teeth removal, replacement of teeth, etc.) for patients actively seeking any organ transplant. If you are living with kidney disease--with or without dialysis--Medicare will not pay for preventative care, like teeth cleanings. What this means for you: If you have Medicare and are actively seeking transplant, meaning [...]

The Making of An Advocate

2024-03-28T20:57:25-04:00June 14th, 2023|Categories: Dialysis, Kidney Transplant, Medication, Mental Health, Support, The Kidney Citizen, Treatment|

Gene Blankenship, DPC Board of Directors Thinking about Life Sitting in my recliner watching the leaves fall like big fat orange snowflakes, I see the trees begin to change colors. My immediate first thought is “How many more seasons of change will I see? Is this my last fall”? Polycystic Kidney Disease (PKD) is a constant passenger in my life. Anytime you have a passenger with you for long periods of time, you will go through events together that stamp your life. For example, as a child, I watched Eugene Taylor Jr., my dad, hook himself up every [...]

Spring 2023 State Advocacy Update

2024-03-28T20:57:26-04:00June 14th, 2023|Categories: Costs for Treatment, Resources, The Kidney Citizen|

Elizabeth Lively, DPC Eastern Region Advocacy Director Pamela Zielske, DPC Western Region Advocacy Director The 2023 legislative session has been a busy and productive one for DPC’s state advocacy efforts. Bills impacting dialysis patients have been introduced in multiple state legislatures and in most cases have moved quickly through the legislative process. Improving access to Medigap coverage is a top priority for DPC, and we are thrilled that legislation was introduced in multiple states this session to expand Medigap access to patients under the age of 65. Last month, DPC celebrated Governor Glenn Youngkin's (R) signing [...]

Toggle Sliding Bar Area
Go to Top