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Don’t Sweat It! – Tips for Renal Patients During Summer Heat

2024-07-10T15:38:16-04:00July 3rd, 2024|Categories: Dialysis, eNews, Kidney Transplant, Lifestyle, Physical Health, Quality of Life, Staying Healthy|

Summer is here and this time of year can be especially challenging for dialysis patients!  No matter how thirsty you are, you must still monitor your fluid intake. At the Dialysis Patient Citizens Education Center, we are continuously researching and sharing information that can improve the quality of life of renal patients. This article focuses on fluid intake and thirst tips and is provided by Fresenius Kidney Care (freseniuskidneycare.com) and DaVita (davita.com). The following information is provided by Fresenius Kidney Care. Dialysis works to remove excess fluid from your blood, so it’s important to manage your fluid intake. Fluids are typically [...]

Merida Bourjolly: Taking Control of Her Care and Finding Meaning Through Advocacy

2024-04-26T15:34:31-04:00April 26th, 2024|Categories: Dialysis, Employment, Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Lifestyle, Physical Health, Quality of Life, Staying Healthy, Support, The Kidney Citizen|

Merida Bourjolly, President of DPC Education Center Board of Directors Merida Bourjolly had a kidney removed when she was just three weeks old, though it wouldn’t be until much later that her experience with dialysis would begin. By then, she already owned her own business and had both a teenage daughter and her mother to take care of at home, which meant starting dialysis came with big adjustments. She did her best to continue working five to six days a week like she had before, but found she was increasingly tired while styling her clients’ hair. Eventually, she [...]

Enjoy Your Life!

2024-03-28T20:57:10-04:00February 8th, 2024|Categories: Dialysis, eNews, Lifestyle, Mental Health, Physical Health, Quality of Life, Staying Healthy, Stress Management|

Dialysis does not mean the end of your life! You are still able to perform many of the tasks that you did prior to dialysis but patience and planning are necessary. Please read the following tips provided by Fresenius Medical Care (www.freseniusmedicalcare.com). Talking to the staff at the dialysis centers. Writing down questions ahead of time and inform family members about changes in treatment. Finding out as much as possible about the illness through a National Kidney Association or Society, local or national support groups, written materials, and educational classes. Staying involved in the pleasures, activities, and responsibilities of daily living. [...]

Why do I need my Parathyroid glands removed?

2024-03-28T20:57:17-04:00August 22nd, 2023|Categories: Dialysis, eNews, Physical Health, Staying Healthy|

By V. Scantlebury, MD, FACS Chronic kidney disease is associated with phosphate retention due to a decrease in the ability of the kidneys to filter phosphate, especially as your kidney function falls below 25 ml/min. Once you start renal replacement therapy, there is an accumulation of phosphorus that is not removed by dialysis treatments. This occurs because of both decreased filtration and decreased excretion of phosphate in various areas of the kidney. High phosphate levels are a stimulus for hyperparathyroidism: the over secretion of parathyroid hormone (PTH) from the glands. There are usually four parathyroid glands located in the neck, all [...]

ESRD and COVID-19 VACCINATION

2024-03-28T20:57:20-04:00June 30th, 2023|Categories: Dialysis, eNews, Immunizations, Kidney Transplant, Physical Health, Staying Healthy|Tags: |

By V. Scantlebury, MD, FACS, DPC Education Center Healthcare Consultant Patients with ESRD have a reduced response to immunizations compared to the general population. This is because the response of their immune system is suppressed, leading to the inability to adequately form an antibody response or maintain antibody titers over time.  The low antibody response appears to be correlated with the degree of kidney failure. Despite the inadequate antibody response, getting vaccinated is still recommended and is most important for patients who are immunocompromised. Just as the annual influenza vaccine is updated every year to cover the most prominent strains of [...]

Fighting Back Against Implicit Bias in Health Care

2024-03-28T20:57:23-04:00June 14th, 2023|Categories: Additional Resources, Mental Health, Physical Health, Quality of Life, The Kidney Citizen|

Tips for how to speak up and speak out against discrimination in a medical setting Kirsten Weir The receptionist requests two forms of identification from you, yet the White person in front of you required no identification to be verified. A nurse who uses a condescending tone of voice: “you people are all alike.” A doctor who doesn’t listen to you: Having just told the doctor you have knee problems, he recommended that you walk 30 minutes every day. Are they just having a bad day — or is it implicit bias? Implicit bias is an attitude or [...]

Four Things You Should Know About the New Medicare Dental Rule

2024-03-28T20:57:24-04:00June 14th, 2023|Categories: Additional Resources, Physical Health, The Kidney Citizen|

Andrea Moore, LMSW, Health Equity Specialist, Quality Insights Renal Network 5 1. Before January 1, 2023, Medicare would pay for a dental exam only for patients who were actively seeking a kidney transplant. Now, the new Medicare dental rule will pay for a dental exam and dental treatment (e.g., dental filling, teeth removal, replacement of teeth, etc.) for patients actively seeking any organ transplant. If you are living with kidney disease--with or without dialysis--Medicare will not pay for preventative care, like teeth cleanings. What this means for you: If you have Medicare and are actively seeking transplant, meaning [...]

8 Ways to Be a Safe Patient

2024-03-28T20:57:28-04:00June 14th, 2023|Categories: Immunizations, Medication, Physical Health, Resources, Staying Healthy, The Kidney Citizen|

When you have surgery, receive dialysis, or visit your doctor, you deserve safe care. Everyone plays a role in patient safety and quality health care. CDC and its partners provide expertise, data, and programs for safe health care to support public health, healthcare workers, patients, and caregivers. How Can I Be a Safe Patient? Speak up. Talk to your healthcare provider about any questions or worries. Ask what they’re doing to protect you from infections. Keep hands clean. Make sure everyone, including friends and family, cleans their hands before touching you. If you don’t see your healthcare providers clean their [...]

A Career and Dialysis Become a Way of Life

2024-03-28T20:57:39-04:00February 1st, 2023|Categories: Dialysis, Employment, eNews, Hemodialysis, In-Center Hemodialysis, Physical Health|

By Gene Blankenship, DPC Board Member I was 42 years old when I crashed into dialysis, though my family obviously knew about my kidney disease. I also worked full time and so the next step was to tell my employer, OPEA. I cannot compliment my employer enough. From the second I told my Supervisor and our Executive Director it was, as the cool kids say, "cake". First words out of their collective mouths were "How can we help?'  My doctor and I had already discussed what I could do while still keeping my health a priority. This made [...]

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