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Falling by the Wayside? Falls Prevention in Dialysis

2024-03-28T20:58:10-04:00April 25th, 2022|Categories: Dialysis, Fact Sheet, Physical Health, The Kidney Citizen|

By Laura Plantinga, PhD, Bernard Jaar, MD, MPH, and C. Barrett Bowling, MD, MSPH Why are dialysis patients at particular risk for falls? Studies show that approximately one-quarter of dialysis patients fall every year, meaning that they are about three times more likely to fall in any given year, compared to the general population. While older age certainly plays a role, there are several other factors that put dialysis patients — regardless of age — at higher risk for falls. In fact, most falls probably result from a combination of factors, usually a combination of long-term “predisposing” risk factors [...]

The Courage to Self-Cannulate – Taking Control Means Less Pain, More Independence

2024-03-28T20:58:11-04:00April 25th, 2022|Categories: Dialysis, Quality of Life, The Kidney Citizen|

By Michelle Carver, Vice President Clinical Service Initiatives at Fresenius Kidney Care If the idea of self-cannulating every time you dialyze seems impossible, you are not alone. Many people fear needles, especially the large ones used for dialysis. But trust me, when you learn to do it, you’ll wonder why you ever doubted yourself. It gives you control, may make your access site last longer and, believe it or not, hurt less. One of my dialysis patients compared it to putting a cotton-tipped swab in your ear – would you rather do it yourself or have someone else do [...]

To Change or Not to Change?

2024-03-28T20:58:12-04:00April 25th, 2022|Categories: Lifestyle, Mental Health, Nutrition, Physical Health, Staying Healthy, The Kidney Citizen|

By Dr. Stacy Ogbeide, Board Certified Clinical Health Psychologist www.stacyogbeide.com “Why is change so hard?” I hear this statement often from the patients I see in primary care. From taking a medication as prescribed to starting an exercise program – change is hard. Having a chronic health condition like Chronic Kidney Disease (CKD) can be difficult because, like many other chronic health conditions, CKD is heavily influenced by lifestyle and behavior modifications. What is a person to do? “I just need to do it.” “I will change when I want to change.” “I will start next week.” “I want [...]

Wellness and Mental Health While Living with Rare Disease

2024-03-28T20:58:14-04:00April 25th, 2022|Categories: Lifestyle, Mental Health, Physical Health, Stress Management, The Kidney Citizen, What Causes Kidney Disease|

  By Maya Doyle, MSW, PhD Cystinosis is a rare lysosomal storage disorder (1) that is typically diagnosed in childhood and typically results in kidney failure and progression to dialysis and/or kidney transplant. In the United States, a disease is considered rare if it is affects fewer than 200,000 Americans. According to the National Institutes of Health (NIH), there are approximately 7,000 rare diseases affecting between 25 and 30 million Americans – this means 1 in 10 people may be affected by a rare condition (2). The experience of a rare condition can be very isolating because of the [...]

Living with Chronic Illness and Bipolar: A Story of Resilience

2024-03-28T20:58:19-04:00April 25th, 2022|Categories: Mental Health, The Kidney Citizen|

By Ashley Abedini I opened my eyes to find myself lying on a hospital bed. This was not exactly a new experience for me; I have a chronic illness called Cystinosis, a metabolic disorder that has led to health issues, most notably kidney failure. As a result of this, I had to go on dialysis for about a year, leading to frequent hospital stays. I was diagnosed at just six months, so it is something that has been a pivotal part of my life. The hospital bed, cold blank walls, and countless nurses were a familiar sight. This hospitalization [...]

How to Move Out of Loneliness and Isolation

2024-03-28T20:58:20-04:00April 25th, 2022|Categories: Mental Health, Stress Management, The Kidney Citizen|

By Rebekah Palmer Oftentimes, people whose bodies live with rare diseases and chronic illness are not only separated from their peers and society, but feel separate from their peers and society. This is especially true regarding peers who are considered able-bodied, as well as a society that is inherently ableist. People who do not live with chronic illness do not always know the existence that is lived regularly with hospital and clinic visits, and the consumption of treatment and medications. It can be what we see and hear on media and online when it comes to how disabled and [...]

New Medicare Initiative to Cover Costs of OTC COVID-19 Tests

2024-03-28T20:58:26-04:00April 22nd, 2022|Categories: eNews, Physical Health, Staying Healthy|Tags: |

Beginning April 4, 2022, Medicare now covers the cost of up to eight over-the-counter (OTC) COVID-19 tests per calendar month for Part B and Medicare Advantage participants. It is important to note that Medicare will not cover OTC COVID-19 tests for patients who only have Medicare Part A (Hospital Insurance) coverage, but they may still be eligible for free tests through other programs. Medicare will cover the costs of these tests until the COVID-19 public health emergency (PHE) comes to an end. Patients can get the tests through any participating pharmacy or health care provider. A partial list of participating pharmacies [...]

Living With Painful Diabetic Peripheral Neuropathy (PDPN)

2024-03-28T20:58:29-04:00April 12th, 2022|Categories: eNews, Mental Health, Physical Health, Resources|

Living with diabetes can be a challenge all on its own, in addition to the complications that can come with it. Painful diabetic peripheral neuropathy (PDPN) is a common type of diabetic neuropathy that occurs in one-fourth of those with Type II Diabetes and is characterized by feelings of pins and needles, prickling, tingling, numbness, or shooting pain, most commonly in the feet. The American Chronic Pain Association has many PDPN resources for both patients and caregivers. There is a PDPN Conversation Guide, which can help patients communicate with their healthcare provider about the location, specific feelings, and severity of their [...]

How to Care for Yourself When You’re a Caregiver

2024-03-28T20:58:33-04:00March 8th, 2022|Categories: eNews, Lifestyle, Mental Health, Nutrition, Physical Health, Quality of Life, Staying Healthy, Stress Management|

Being a caregiver is a huge responsibility – whether you’re a parent, spouse, or sibling, being fully responsible for the well-being of someone else can be a full-time job. When you also need to juggle work or raising children as well, it is no wonder that the caregiver’s needs are often what gets neglected. Studies have shown that no matter the age, sex, race, or ethnicity of the caregiver, all are more likely to be sleep-deprived, unable to exercise regularly, and have poor eating habits.  They are also less likely to keep up with doctor’s appointments for themselves or allow themselves [...]

Identifying Health Misinformation

2024-03-28T20:58:34-04:00March 1st, 2022|Categories: eNews, Immunizations, Lifestyle, Mental Health, Physical Health|Tags: |

Over the last two years, people have been exposed to a lot of information, from many different sources, regarding COVID-19. There are many reputable sources for health information, such as the Center for Disease Control (CDC) and World Health Organization (WHO). However, there has been a recent rise in health misinformation, which caused confusion about vaccination and other public health measures, such as masking and social distancing. Although health misinformation is not new, with more people having access to the internet and various social media platforms, it has spread in recent years at an unprecedented rate. In order to keep yourself, [...]

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