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Understanding and Managing Chronic Pain Recording and Slides

2024-03-28T21:00:19-04:00July 19th, 2018|Categories: Physical Health, Symptoms, Webinar, What Is Kidney Disease|Tags: |

If you were unable to attend last month's education seminar, the recording is now available! Please see the video below for details. In addition, download the slides. We want to keep getting better. Please help us by sharing your comments and suggestions here: Webinar Review In some studies, over 70% of people with CKD report chronic pain. If you are one of the 70%, or if you take care of them, this program will give you medical and non-medical ways to understand, reduce, and manage chronic pain. You may not eliminate it completely, but you can make pain a much smaller [...]

The Sweetest Taboo

2024-03-28T21:00:24-04:00May 3rd, 2018|Categories: Sex and Intimacy, The Kidney Citizen|

By Charissa Rice Shhh…not so loud. This is a topic or subject that not too many want to talk about. That’s funny because most of us spend a lifetime trying to do it. So why is sex and anything pertaining to it so taboo? I guess as a patient with a chronic illness that should be the last thing on my mind. I can remember when visiting my many doctors, hearing them discuss different symptoms and what I might expect with my many illnesses. I have lupus and also kidney failure. There are a lot of things that can cause my [...]

When You Have Lost That Loving Feeling: Sex and Intimacy on Dialysis

2024-03-28T21:00:52-04:00November 3rd, 2017|Categories: Sex and Intimacy, The Kidney Citizen|

By Erich Ditschman “Well, hello, Mr. Ditschman. How is your sex life?” This is one greeting I have never heard in my dialysis clinic. Okay, well maybe by Michael in the waiting room. And yes, I did blush. But, I never heard this once from my doctor, nurse, dietitian or social worker. In my 17-years on dialysis, sex has not been that big of a concern for my medical team, certainly not as big as keeping me alive. If you check out your dialysis clinic’s website, you will probably find a link near the bottom of the page to a “Sexuality [...]

National Disability Employment Awareness Month

2024-03-28T21:00:56-04:00October 16th, 2017|Categories: Employment, eNews, News & Events, Quality of Life|

October is National Disability Employment Awareness Month. The purpose of National Disability Employment Awareness Month is to educate about disability employment issues and celebrate the many and varied contributions of America's workers with disabilities. Held annually, National Disability Employment Awareness Month is led by the U.S. Department of Labor's Office of Disability Employment Policy, but its true spirit lies in the many observances held at the grassroots level across the nation every year. Employers of all sizes and in all industries, are encouraged to participate in NDEAM. For specific ideas about how your employer can support National Disability Employment Awareness Month, visit www.dol.gov/ndeam. [...]

Smell Loss and Kidney Disease

2024-03-28T21:01:07-04:00September 6th, 2017|Categories: eNews, Nutrition, Quality of Life|Tags: |

Our sense of smell is not only used to appreciate new blooms in Spring and the aroma of a great meal but is essential when we taste our food as well. Recently, researchers have found those with advanced kidney disease may experience a loss of smell. While the cause is unknown, researchers are looking for ways to improve the sense of smell in kidney disease patients in order to decrease rates of malnutrition. When your sense of smell is reduced, your ability to taste food is also reduced. This could lead to food aversion and eating less. As a kidney disease [...]

The Waiting Game: How to Endure the Transplant Wait List

2024-03-28T21:01:08-04:00September 1st, 2017|Categories: Fact Sheet, Kidney Transplant, Mental Health, Stress Management, Support, The Kidney Citizen|

By Kirsten Weir If you are on the organ transplant waiting list (or hoping to be listed soon), you have probably experienced all kinds of emotions: Excitement, nervousness, anxiety, fear, joy, guilt. Maybe all in one day! The average time spent on the waiting list for a kidney varies from region to region. But for most patients, that wait is measured in years, not months. As the years go by, some people go about their daily lives and forget they are waiting for a life-changing call. Others feel mounting anxiety and hopelessness. All of those feelings are completely normal, says Heather [...]

Next Education Call: Relationships and Kidney Disease

2024-03-28T21:01:09-04:00August 30th, 2017|Categories: eNews, News & Events, Quality of Life, Sex and Intimacy, Webinar|

Join us Tuesday, September 19 at 1:00 PM Eastern to discuss relationships and Kidney Disease. A companion call to our previous presentation on "Intimacy and Kidney Disease" two patients will discuss how dialysis has changed relationships in their lives. They will offer their perspective on handling different types of relationships while being a dialysis patient. We hope you can join us for this important topic. Watch the Recording:

Next Education Seminar: Depression and Kidney Disease

2024-03-28T21:01:19-04:00May 3rd, 2017|Categories: eNews, Mental Health, Stress Management, Webinar|

Life with a chronic illness can be a bumpy road with many hurdles to navigate along the way. Emotional ups and downs due to stress are common among people undergoing dialysis treatments. If you find yourself experiencing issues of depression, anxiety, fear and anger, you are having a normal reaction to stressful circumstances. And you are not alone in this. Yet, despite being surrounded by other people, a sense of isolation may arise. There are ways to address these normal feelings. This webinar will present some guidelines for coping with the array of emotions common to life with dialysis and chronic [...]

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