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Are You Scared or Anxious about COVID-19?

2024-03-28T21:00:09-04:00June 2nd, 2020|Categories: eNews, Lifestyle, Mental Health, Support|Tags: |

Updated September 10, 2020 We are living in a time of uncertainty with the COVID-19 pandemic, which can lead to stress, fear, depression, and anxiety. We may feel overwhelmed at times and bored at other times. We may be at a loss for how to cope with social distancing, not seeing friends and family, and the possibility of getting sick. If you are a dialysis patient, receiving treatment either in-center or at home, your facility social worker is a great resource for you. Or, if you are a transplant patient, you can talk to your transplant social worker for support. [...]

Beyond Sanitizing and Social Distancing–A Healthy Circadian Rhythm May Keep You Sane and Increase Resilience to Fight COVID-19

2024-03-28T21:00:20-04:00April 20th, 2020|Categories: eNews, Lifestyle, Mental Health, Physical Health|Tags: |

By Satchin Panda, University of California San Diego Social distancing and washing hands have become the frontline in the fight against COVID-19, but there is another powerfully protective resource immediately available to all: your circadian rhythm. I head a lab that researches circadian rhythms, the daily cycles of bodily functions that form the foundation of good health. These body clocks, found in nearly every organ of the body and part of the brain, are central and vital to a properly functioning immune system. A synchronized circadian rhythm in the lungs, heart, kidney and brain ensures that the processes in our [...]

Survey: Seeking Advice from Parents of Children with Kidney Disease

2024-03-28T21:00:35-04:00January 25th, 2020|Categories: eNews, Hemodialysis, Medication, Mental Health, Pediatric Kidney Disease|

The DPC Education Center is developing an online program to serve as a resource for parents of children with kidney disease. In order for this program to be successful, we need the guidance of parents willing to share tips and stories about how they helped their child thrive while living with this condition and juggling life's multiple demands. Feedback is needed in the areas of treatment, medication and mental health. If you are a parent of a child with kidney disease and would like to help us with this project, please click this link (or answer the questions in the box [...]

There’s a Grant for That!

2024-03-28T21:00:38-04:00January 1st, 2020|Categories: Additional Resources, Costs for Treatment, Employment, Humor and Laughter, Lifestyle, Mental Health, Music, Physical Health, Webinar|

Do you have an idea to help others living with kidney disease? Are you interested in going back to school or work? There’s a grant for that. If you’ve never applied for a grant before, don’t worry. With resources to help guide you, it doesn’t have to be overwhelming. The End Stage Renal Disease National Coordinating Center (ESRD NCC) Patient Grant Library has what you need to help find the grant that’s right for you. It also offers links to sources for writing a proposal, creating a budget and submitting an application.

8 Things About Living with A Chronic Disease That Others May Not Understand

2024-03-28T21:00:57-04:00August 27th, 2019|Categories: eNews, Lifestyle, Mental Health, Physical Health, Stress Management|

"If you see us 'enjoying' ourselves, it doesn’t mean we aren’t sick." This is one of a handful of ideas shared by a woman who has lived with a chronic illness for the past 12 years. She decided to create a blog to share her experience and spread awareness about others that may be going through something similar. If there are friends or family in your life that are having trouble relating to what you are going through, it may be helpful to share this article with them. Or perhaps it will inspire you to put your thoughts on paper and [...]

Caregivers for People with Chronic Illness

2024-03-28T20:59:08-04:00May 31st, 2019|Categories: eNews, Fact Sheet, Lifestyle, Mental Health, Stress Management, Support|

By Amy Walters, PhD, Licensed Psychologist Below is a summary handout about understanding and helping the caregivers in our life. What We Know About Caregivers Report feeling overwhelmed, frustrated and lonely Report high levels of stress and depressed symptoms Are tired and sleep deprived Have higher rates of illness (2x higher) but seek medical attention less often Often neglect their own self care Experience more relationship conflicts Feel a sense of loss – independence, freedom, dreams for the future Attitude matters – those who believe they are not effective have higher levels of stress and depression Strong social support systems [...]

Psychosocial Factors Affecting Children and Families Living with Chronic Illness

2024-03-28T20:59:12-04:00May 6th, 2019|Categories: eNews, Lifestyle, Mental Health, Pediatric Kidney Disease, Support, Webinar|

During this webinar, Amy Walters, PhD, Clinical Psychologist will discuss: 1) the psychological and emotional side effects of chronic illness on children and families, 2) how illness impacts different stages of childhood development, 3) common concerns reported by parents and children and 4) ways to support children and their families in coping with chronic illness. About the Presenter Amy Walters, PhD, is a clinical psychologist and the Director of Behavioral Health Services for St. Luke’s Humphreys Diabetes Center in Boise, Idaho. Dr. Walters works with patients to overcome barriers to behavioral change, learn to cope with chronic illness, and address issues [...]

Living with Kidney Disease: Tips for Teens on How to Cope

2024-03-28T20:59:14-04:00April 22nd, 2019|Categories: eNews, Mental Health, Pediatric Kidney Disease|

By Elizabeth Lewan, Communications & Grassroots Program Coordinator at the American Psychological Association Your kidneys have many functions in the body and play an important role in your overall health and wellness. They help the body eliminate harmful toxins by filtering waste and extra fluid from your blood, control blood pressure and keep your bones healthy. Although you have been diagnosed with chronic kidney disease, you can still live a meaningful and healthy life. You may be feeling scared or unsure about your health or the changes happening to your body. It may seem like you’re on an emotional roller coaster, [...]

Maintaining Personal Relationships While on Dialysis

2024-03-28T20:59:19-04:00March 25th, 2019|Categories: Mental Health, Sex and Intimacy, Support, The Kidney Citizen|

By Alex Purcell People with end-stage renal disease (ESRD) who have gone through dialysis can tell you that it is exhausting—and so can their loved ones. Not only does dialysis take a physical toll on the patient, it can also put significant stress on the patient’s relationships with their friends and family, right when they need those relationships the most. This dynamic can be especially complicated if the primary caregiver is a spouse or close relative. If you’re in this situation, as either a patient or a loved one, you may be feeling frustrated, sad or lonely. But there’s hope: transplant [...]

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