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My New Normal

2024-09-23T13:54:24-04:00September 23rd, 2024|Categories: Dialysis, Mental Health, Peritoneal Dialysis, Physical Health, The Kidney Citizen, Treatment|

By Karim Rattani, DPC Patient Ambassador My journey with End Stage Renal Disease (ESRD) has included much suffering, but it has also shaped me into a stronger, more loving man. Throughout all of it, I’ve adjusted to a “new normal” with ESRD and found that life can still be fulfilling and full of possibilities. I worked as a chauffeur and ran a public transportation Limousine service business just before the COVID-19 pandemic began in 2020. Once the pandemic hit, most of the businesses were shutdown with an executive order and therefore I, like many others, also lost most [...]

Sometimes It’s a Blessing in Disguise

2024-09-23T13:54:22-04:00September 23rd, 2024|Categories: Dialysis, Hemodialysis, Home Hemodialysis, In-Center Hemodialysis, Lifestyle, Mental Health, Peritoneal Dialysis, Physical Health, Quality of Life, The Kidney Citizen|

By Layce Ryan, DPC Patient Ambassador I remember when I first learned about my kidney disease. I was a college student living in Kalamazoo, Michigan, when I suddenly fell very ill. After running some tests, the doctors diagnosed me with focal segmental glomerulosclerosis (FSGS), a type of chronic kidney disease (CKD), which is the early stages of full kidney failure, also known as End Stage Renal Disease (ESRD). In an instant, my life changed dramatically, and I was faced with the reality that the worst was yet to come. It would be 10 years before I began dialysis [...]

Insomnia

2024-09-10T15:38:27-04:00September 3rd, 2024|Categories: eNews, Lifestyle, Mental Health, Nutrition, Physical Health, Quality of Life, Staying Healthy|

Insomnia is often a constant complaint for a great deal of renal patients.  It can be especially annoying when one has to get up early the next day for whatever reason. Sleep is necessary and the deprivation of sleep can affect the body in many ways. DaVita Kidney Care has outlined why insomnia may occur and tips to help avoid insomnia. The following information can be found on DaVita's website (davita.com).  Sleep Issues and Chronic Kidney Disease People with chronic kidney disease (CKD) often have trouble falling asleep and staying asleep. Your physical and mental health can contribute to your sleep problems. These are some [...]

How Transplant Changed My Life Forever

2024-04-26T15:38:46-04:00April 26th, 2024|Categories: Costs for Treatment, Dialysis, Hemodialysis, Kidney Transplant, Mental Health, The Kidney Citizen|

Adrian Ropp, DPC Patient Ambassador It was Christmas and I was home to visit my parents for the holidays. It was the first time I had traveled there in a year without my dialysis equipment or a schedule to visit a clinic. A brave police officer named Albert had recently lost his life, but he had registered as an organ donor. Because of this, I was celebrating a Christmas I had not expected. It happened (and believe me, it is a story that would take this whole article) that my savior’s family - his wife Lori and their [...]

Enjoy Your Life!

2024-03-28T20:57:10-04:00February 8th, 2024|Categories: Dialysis, eNews, Lifestyle, Mental Health, Physical Health, Quality of Life, Staying Healthy, Stress Management|

Dialysis does not mean the end of your life! You are still able to perform many of the tasks that you did prior to dialysis but patience and planning are necessary. Please read the following tips provided by Fresenius Medical Care (www.freseniusmedicalcare.com). Talking to the staff at the dialysis centers. Writing down questions ahead of time and inform family members about changes in treatment. Finding out as much as possible about the illness through a National Kidney Association or Society, local or national support groups, written materials, and educational classes. Staying involved in the pleasures, activities, and responsibilities of daily living. [...]

Fighting Back Against Implicit Bias in Health Care

2024-03-28T20:57:23-04:00June 14th, 2023|Categories: Additional Resources, Mental Health, Physical Health, Quality of Life, The Kidney Citizen|

Tips for how to speak up and speak out against discrimination in a medical setting Kirsten Weir The receptionist requests two forms of identification from you, yet the White person in front of you required no identification to be verified. A nurse who uses a condescending tone of voice: “you people are all alike.” A doctor who doesn’t listen to you: Having just told the doctor you have knee problems, he recommended that you walk 30 minutes every day. Are they just having a bad day — or is it implicit bias? Implicit bias is an attitude or [...]

Andrew Carr Knows There’s More for Him

2024-03-28T20:57:24-04:00June 14th, 2023|Categories: Dialysis, Kidney Transplant, Mental Health, Stress Management, The Kidney Citizen|

Andrew Carr Kidney disease has been part of Andrew’s life since he was 7 years old, when he was diagnosed with Hydronephrosis. Now 29, Andrew has had kidney disease for the majority of his life, but he’s guided by the principle that his kidney disease doesn’t control his life, he does. Andrew began dialysis treatments when he was 19. While Andrew’s exposure to kidney disease happened so early in his life, he does not remember how he felt about it at its outset, but vividly remembers the beginning of his dialysis treatments. For three-and-a-half years Andrew persevered through [...]

The Making of An Advocate

2024-03-28T20:57:25-04:00June 14th, 2023|Categories: Dialysis, Kidney Transplant, Medication, Mental Health, Support, The Kidney Citizen, Treatment|

Gene Blankenship, DPC Board of Directors Thinking about Life Sitting in my recliner watching the leaves fall like big fat orange snowflakes, I see the trees begin to change colors. My immediate first thought is “How many more seasons of change will I see? Is this my last fall”? Polycystic Kidney Disease (PKD) is a constant passenger in my life. Anytime you have a passenger with you for long periods of time, you will go through events together that stamp your life. For example, as a child, I watched Eugene Taylor Jr., my dad, hook himself up every [...]

For Mike Guffey, Working Was Key to Staying Positive

2024-03-28T20:57:27-04:00June 14th, 2023|Categories: Diagnosis of Kidney Disease, Dialysis, Employment, Hemodialysis, In-Center Hemodialysis, Kidney Transplant, Mental Health, Quality of Life, The Kidney Citizen|

Mike Guffey When Mike Guffey began dialysis treatments in 2008, one of his top priorities was to ensure he had a reason to keep moving forward, something to look forward to when he got out of bed which would allow him to push through his treatment regimen. For him, that meant returning to work as quickly as he could after starting his treatments, especially given how quickly he crashed into life on dialysis. Normally based in Kansas City, Mike was working temporarily as a project manager in Colorado when he noticed something was off. He went to the [...]

Telehealth with a Behavioral Health Professional: What to Know Before You Start

2024-03-28T20:57:51-04:00October 27th, 2022|Categories: Mental Health, The Kidney Citizen|

By Kirsten Weir If you or a family member is managing chronic kidney disease, you’re probably thinking a lot about physical health—the health of the kidney and the rest of the body. Caring for your behavioral health is just as important. And with telehealth options that let you see a behavioral health professional from your home, it’s more convenient than ever. “The increased availability and acceptance of telehealth might be one of the few positive changes to come out of the [COVID-19] pandemic,” says Amy Walters, PhD, a clinical health psychologist and the director of Behavioral Health Services for St. [...]

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