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About Hannah Bracamonte

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So far Hannah Bracamonte has created 570 blog entries.

Ask Your Nephrologist: What is happening to my skin and nails?

2024-03-28T20:59:08-04:00May 19th, 2021|Categories: Dialysis, Kidney Transplant, Physical Health, The Kidney Citizen|

Keith A. Bellovich, DO There is a broad range of skin manifestations when having to depend on dialysis. Skin disorders can affect a patient's quality of life and can negatively impact their mental and physical health. Itching (uremic pruritus) is by far the most common complaint that patients suffer. But dry skin (xerosis cutis) and skin discoloration are also common complaints in patient with severe loss of kidney function. Dry skin is caused by reduction in the size of sweat glands and atrophy of sebaceous or oil producing glands. Dry skin increases the susceptibility to infections and this is aggravated by [...]

CMS Makes it Easier for Consumers to Find Prices on Hospital Services

2024-03-28T20:59:09-04:00May 11th, 2021|Categories: Costs for Treatment, eNews|

The Centers for Medicare & Medicaid Services (CMS) issued a new rule on hospital price transparency that went into effect January 1, 2021. Under a section of the Public Health Service Act (PHSA), hospitals are required to publish a list of standard charges each year. Originally, hospitals could fill this requirement just by publishing their chargemaster list (a comprehensive list of all products, procedures, and services provided by a hospital) online; now, however, hospitals are told exactly what they are required to publish, and how to publish it, in order to comply with the PHSA. Hospitals must publish the following five [...]

COVID-19 Vaccines for Dialysis and Transplant Patients – What We Know

2024-03-28T20:59:10-04:00May 3rd, 2021|Categories: eNews, Immunizations, Staying Healthy|Tags: |

As more and more people in the United States receive the COVID-19 vaccine, researchers have been able to learn more about efficacy rates in different patient populations. Unfortunately, preliminary research suggests that efficacy rates may be lower in both dialysis and transplant patients. In a small study, published April 6, 2021 on CJASN ePress, researchers found that, although study participants on hemodialysis did develop a substantial antibody response following two doses of the Pfizer-BioNTech mRNA vaccine, it was significantly lower than the response of the control group comprised of participants not on dialysis. It was also found that older patients, regardless [...]

How I Cope During the COVID-19 Pandemic

2024-03-28T20:59:11-04:00April 21st, 2021|Categories: Mental Health, The Kidney Citizen|Tags: |

By Nina Kasl, dialysis patient This pandemic has us isolated from things we used to enjoy! We are unable to visit our friends and families. It is not going to go away anytime soon. Just taking walks by myself was not making me good at all. I knew then I needed to do something. That something had to be done. I was tired of the isolation I felt. I needed something that I could do on my own or with the immediate family. I made an idea sheet. It showed me what I can do. I found journaling as a way [...]

There Is No Place Like Home

2024-03-28T20:59:12-04:00April 19th, 2021|Categories: Home Hemodialysis, Peritoneal Dialysis, The Kidney Citizen|

By Shaminder Gupta, MD, Nephrologist End Stage Renal Disease (ESRD) is a life changing diagnosis and impacts both the patient and the family. While waiting for renal transplantation, renal replacement therapy (RRT) is required to sustain life. RRT, also known as dialysis, can be provided either in-center or at home. Home therapies can either be via peritoneum (PD) or via fistula (HHD). Patients are concerned about their own abilities to provide this life sustaining therapy on their own. This is natural and should be anticipated as a barrier. Most of us, including medical professionals, would also share these apprehensions. Success at [...]

What We Learned from Care Partners

2024-03-28T20:59:12-04:00April 19th, 2021|Categories: Patient Support Group, The Kidney Citizen|

By Kathi Niccum, EdD, Education Director The 2020 DPC Member Survey included a section for caregivers/care partners. From the 146 respondents, 84% were women and the average age was 55.6 years. The caregivers did much of the grocery or other shopping, the housework, meal preparation, managing finances and helped with transportation and other outside services. But besides playing a key role in managing the household, they also were involved in nursing tasks, helped monitor the severity of their care recipient’s condition, helped communicate with health care professionals and helped their care recipient advocate for themselves regarding health care providers, community services, [...]

Getting Fit After Transplant

2024-03-28T20:59:13-04:00April 19th, 2021|Categories: Kidney Transplant, Lifestyle, Physical Health, The Kidney Citizen|

By Collette Powers, MA, RDN, LDN, ACSM EP First of all, let us start off by saying a huge congratulations! Whether you are preparing for a transplant or already received a kidney transplant, you have taken a pro-active step in your own healthcare. This is a major accomplishment and one worth much recognition. Kudos to you! As part of the transplant journey, you learn a great deal of information regarding the transplant process. Topics may range between diet management, medication management and organ infection/rejection prevention to name a few, but what about physical activity? Can you exercise after receiving your new [...]

My Experience Working During the COVID-19 Pandemic While Living With A Kidney Transplant

2024-03-28T20:59:14-04:00April 19th, 2021|Categories: Employment, Staying Healthy, Stress Management, The Kidney Citizen|Tags: |

By Merida Bourjolly, DPC Education Center President ANXIETY OF COMING BACK I am sure everyone has felt the impact of the COVID-19 Pandemic. This is the first time I have experienced a complete shut down in my industry due to a virus. Additionally, the lockdown provided an opportunity for a pause and a chance to rethink my priorities and what is meaningful. From a financial perspective, this shut down taught me how to adapt to uncertain economic times. I am really grateful for technology that helped us connect virtually, provided an opportunity to work, and to make it through a stressful [...]

Cystinosis: A Rare and Under-Recognized Cause of Kidney Failure

2024-03-28T20:59:15-04:00April 19th, 2021|Categories: The Kidney Citizen, What Causes Kidney Disease|

By Ladan Golestaneh, MD, MS What is Cystinosis? Cystinosis, or Nephropathic Cystinosis, is a rare genetic disease that affects boys and girls equally and causes a defect in the way that lysosomes (small organelles in cells that remove waste products) are able to remove an amino acid (protein subunit) called Cystine.1-4  The name of the defected gene is CTNS which affects “Cystinosin”, the protein that normally takes Cystine out of the lysosome. As a result of this defect, Cystine accumulates in the cells of various organs and tissues of the body and causes extensive damage. The disease is progressive, meaning it [...]

Join Us by Telephone for Our New Program!

2024-03-28T20:59:15-04:00April 19th, 2021|Categories: Mental Health, Patient Support Group, Quality of Life, Support, The Kidney Citizen|

By Kathi Niccum, EdD, Education Director In March we launched our first Patient Support Group meeting by telephone. Having a support group has been one of our goals for years and we are happy to announce it is now a reality. We chose to have the group meet by phone instead of online in a Zoom meeting because we think most people use the telephone. And we want the support group to be available to all patients at any stage of kidney disease and to their families. On the second Tuesday of each month, at 3:00 pm Eastern, you can join [...]

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